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Researching Cures for Inherited Cardiomyopathies

⁠ Our peers at Cardiomyopathy UK are working alongside CureHeart to develop the first cures for inherited cardiomyopathies, like DCM. ⁠ You can support this extraordinary effort. Please watch this YouTube video to learn more: https://bit.ly/3Bxm1MU

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Recall of 48,000 Boston Scientific pacemakers, CRT-Ps

“The FDA has announced that Boston Scientific is recalling 48,000 INGENIO pacemakers and cardiac resynchronization therapy pacemakers (CRT-Ps). The recall is due to potential issues when the devices transition to safety mode….” To read the full article, please click here. (Shared from Cardiovascular Business, August 6, 2021)

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Stages of Heart Failure

DCM patients and their family members often have questions regarding the stages of Heart Failure. Heart failure is a constellation of signs and symptoms that can be caused by DCM. There are many disease conditions that can cause DCM and other types of cardiomyopathy. Symptom severity of heart failure is classified and categorized by the

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Update: 28 Apple Products that May Interfere with Medical Devices

This article is a follow-up to our most recent article regarding the potential for Apple devices to interfere with medical devices. On June 25, 2021, Apple released an updated list of its products that may interfere with medical devices, stating: “Under certain conditions, magnets and electromagnetic fields may interfere with medical devices… For example, implanted

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Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center

Major research is being conducted on the genetics of DCM right in our own backyard. Researchers at the Ohio State University’s Wexner Medical Center and College of Medicine classified 19 genes associated with DCM.⁠ ⁠ DCM Foundation board member, Dr. Ray Hershberger, was involved in the research and said, “This was a great example of

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An Important Update on Apple iPhone Interference with IEDs

As we reported back in February, newer models of smartphones, such as the iPhone 12, can interfere with the operation of cardiac implantable electronic devices (CIEDs) if the phone is placed in close proximity to the device or over the device. As per the latest study referenced below, “Magnet wireless charging is being utilized increasingly

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Adam’s Story of Familial Dilated Cardiomyopathy

Meet Adam Burkhart, a patient with familial dilated cardiomyopathy. Adam says that his story truly began in 1968 when his aunt died at the age of 13. That was the start of his family’s reckoning with familial dilated cardiomyopathy. Everyone born in their family until 1988 was tested for gene variants that can cause DCM.

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Establishing Local DCM Support Groups

We heard you! Many DCM patients and family members have expressed a need for local DCM support groups where they can discuss their shared experiences with dilated cardiomyopathy.  As a result of your input, we are excited to announce the DCM Foundation is beginning discussions with a number of DCM hospitals and research centers around

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An Important Message from Our Partner – Global Heart Hub

The message is simple and clear – If you are experiencing the symptoms of a heart attack or stroke, don’t delay – Every minute counts. If you have chest pain or other heart symptoms – such as shortness of breath, severe pain in the throat, neck, back, stomach, or shoulders that lasts for more than 15

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