Founder and Executive Director
In 2014, Greg was diagnosed with DCM and required an ICD. Through genetic testing, it was revealed he had three mutations responsible for his DCM. A number of his relatives carry genetic mutations that can cause DCM.
Greg retired from his work as a business entrepreneur and in 2017 he launched the DCM Foundation to bring education, hope, and resources to DCM patients and their family members. Greg hopes that by raising awareness and supporting DCM research, a means will be found to halt, reverse or even completely prevent DCM from developing in at-risk individuals.
After a period of worsening heart failure, on July 15, 2021, Greg had a successful heart transplant. Greg lives in Dublin, Ohio with his wife Brenda of over 30 years, and together they have three grown children and three grandchildren.
Jae-ann Rock, M.Ed.
Director of Information and Education
Having worked with Greg Ruf in other business ventures since 2015, Jae-ann was honored to join the DCM Foundation in 2019. She utilizes her business and marketing experience to expand the Foundation’s impact and reach, providing information about dilated cardiomyopathy and the genetics of cardiomyopathy to DCM patients, family members, and the medical community.
Jae-ann is also a third-generation member of the groundbreaking Framingham Heart Study, a cardiovascular cohort study that began in 1948. Much of the now-common knowledge concerning heart disease – such as the effects of diet, exercise, and common medications such as aspirin – is based on this study.
In her free time, Jae-ann enjoys spending time with her family, traveling, gardening, hiking, and volunteering.
Patient Resource Consultant
Stephanie was diagnosed with DCM at the age of 15 and has lived well with cardiomyopathy for more than 40 years. In 2012 she learned she has the MYH7 gene mutation which can cause DCM. Of her three children, two have DCM caused by the same gene. Of her three grandchildren, one has DCM with the MYH7 gene mutation.
For more than 20 years Stephanie worked as an accountant. Then, more than 10 years ago, she started a DCM Facebook group to help DCM patients and family members share stories and treatments. She now manages two DCM patient Facebook groups totaling more than 7,000 members.
Today, Stephanie also works part-time as a patient resource consultant for the DCM Foundation, responding to cardiomyopathy patient questions, sharing information and educational resources, and providing patients and family members with hope and support.
Marketing and Admin Consultant