If you’re interested in being genetically tested for DCM, you can do so by simply clicking the below links to learn about Invitae’s genetic testing options.
The DCM Foundation is very pleased to partner with Invitae on the Patient Insights Network (PIN) Program. DCM patients and their at-risk family members can register for the PIN to get information about DCM clinical trials and studies that help researchers and drug developers find better treatments, faster. Invitae offers sponsored, no-charge genetic testing and counseling for individuals suspected of having a familial cardiomyopathy or arrhythmia. Click the link below and scroll to the bottom of the webpage for more information on Invitae’s genetic testing options.
Research & Clinical Trials
Our mission includes supporting research that advances the understanding of DCM. We are grateful for the medical centers and other organizations whose research and work help us move toward DCM treatments and interventions. The DCM Foundation makes no recommendations, endorsements, warranties, or representations of any kind regarding these clinical trials and research opportunities.* Always talk to your healthcare provider before participating.
Pfizer is currently recruiting participants for a clinical study in LMNA-related DCM patients.
Myokardia/BMS is currently recruiting participants for a clinical study in DCM patients with MYH7 or TTN variants.
The DCM Research Project, housed at the Ohio State University with consortium sites across the United States, aims to advance understanding of the genetics of DCM by conducting family-based research studies that include a large number of families.
*Part of the DCM Foundation’s mission is to share information about the latest clinical trials and research opportunities in the DCM field. The DCM Foundation does not imply or warrant the effectiveness or outcome of these or any clinical research trial. The DCM Foundation has not evaluated the shared information in any way. Participation in clinical trials is at the sole discretion of the potential participant. Potential participants should always know the risks and potential benefits of clinical trials and should talk to their healthcare provider before participating.