Support Groups & Resource Links

Living with DCM can be difficult at times, but it’s important to know that you are not alone.

If you or a loved one has been diagnosed with DCM, it can be helpful to connect with others who are going through similar experiences. There are many online resources that can assist DCM patients and their family members to feel more hopeful and supported through this journey.

Please explore the support resources below and click on the links provided to learn more about each resource, and ask your local hospital about support groups in your area.

Facebook groups

DCM-Specific Facebook Groups

These Facebook groups are for people with DCM and their loved ones. The groups offer support, information, and a place to connect with others who understand what you’re going through:

Gene-Specific Facebook Support Groups for Patients

Don’t see your gene listed? Interested in starting a group for your cardiomyopathy gene? Email us at:

Gene-Specific Websites
Heart Device Groups
Heart Failure and/or Cardiomyopathy Groups

Do you have additional questions? Please email

Websites & Resource Links

Zoom support group meetings

  • To sign up for any of the groups listed below, please visit:
    • Living with Chronic Illness Support Group
    • Creativity & Chronic Illness – A peer support group for those living with chronic illness who would like to express themselves through art. No artistic talent necessary. Only pen and paper needed.
    • Living Mindfully with Chronic Illness – A supportive group for those wanting to live mindfully and with self-compassion.
    • Supporting a Loved One with a Chronic Illness
    • Teens Living with Chronic Illness – A support group for teens ages 15-17.

recorded webinars

Helpful Tips and Ideas for Living with DCM

The following webinars provide tips and ideas for living with DCM, including how to do daily tasks, self-advocate, navigate financial/insurance issues and more.

Click on each link below to view the recorded webinar: