felt Thanks
On the 10th of October 2022 the LMNA Cardiac Foundation is organizing an international LMNA Patient Meeting together with the Netherlands Heart Institute. This webinar will focus on patients but family members and industry experts are more than welcome to join as well. This is a free online webinar with some very interesting speakers. The
Read More… from Online LMNA Patient Meeting Notice – October 10, 2022
Dr. Robin Germany explains Central Sleep Apnea and its connection to dilated cardiomyopathy.
Read More… from What You Should Know About Cardiomyopathy & SILENT Sleep Apnea
You’re invited to the DCM Patient and Family Virtual Conference. Date: Saturday, September 24, 2022 Time: 11:00 AM – 5:00 PM ET Location: ONLINE via Zoom link We are thrilled to host the first-ever DCM conference designed specifically for DCM patients and their family members. Click here to learn more. On Saturday, September 24 from
Read More… from First DCM Patient and Family Conference Being Held Virtually 9/24/22
Learn about the basics of DCM genetics and the future of DCM gene therapy.
Read More… from DCM Gene Therapy Advancement at Tenaya Therapeutics
SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Tenaya Therapeutics, Inc. (NASDAQ: TNYA), a biotechnology company with a mission to discover, develop and deliver curative therapies that address the underlying causes of heart disease, today announced that it has completed the build-out and operational launch of its Genetic Medicines Manufacturing Center in Union City, California. Tenaya is advancing a
We’re honored to be able to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt and persevere. Stephanie was born with DCM but wasn’t diagnosed until she
Read More… from Stephanie Fallon’s Story – Living Well with DCM Since Age 15
This week is Cardiomyopathy Awareness Week, a campaign led by the Cardiomyopathy Patient Council of the Global Heart Hub. This week, we aim to raise awareness and improve understanding of the disease, with a view to enabling people to live well with the condition. We hope that you will share the information below with others
Read More… from Cardiomyopathy Awareness Week – Signs & Symptoms of Cardiomyopathy
By Denise Williams | News & Views Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had
“Shane Smith (28) has shared his story as a reminder of how life-changing organ donation can be. At the age of 14, Shane was diagnosed with a mild heart condition and within a year, his life depended on a heart transplant…” To read about Shane’s experience with DCM and heart transplant – please click here.
Mary Beth Maydosz, a Nurse Practitioner and Certified Heart Transplant Coordinator, will guide us through information about the steps to transplant, surgery, post-transplant monitoring and keys to success. (sponsored by CareDx) To access the Heart Transplant webinar slide deck, please click here.
Read More… from The Heart Transplant Journey – What You Should Know
