DCM Foundation
Heartfelt Thanks
to our Sponsors

Cardiomyopathy Study Participants Needed for 5 Minute Survey

Are you affected by cardiomyopathy?   Please CLICK HERE to access a 5-10 minute survey. Learn more below. CureHeart is developing genetic therapies to treat inherited cardiomyopathy. https://cureheart.org/patients The CureHeart project brings together researchers across the UK, US and Asia, and commercial as well as patient advocacy partners, to develop effective genetic therapies for cardiomyopathies. The

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DCM Clinical Trial Now Enrolling

Clinical Trial Now Enrolling for Patients with Dilated Cardiomyopathy (DCM) due to Genetic Mutations or Unknown Causes Bristol Myers Squibb is conducting a clinical trial in patients with DCM due to genetic mutations or unknown causes. Details of the study and eligibility requirements are listed below and participating in such research can help advance therapies

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Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives

Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to

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New Potential Targets for Gene Therapy in Heart Failure Patients

New targets for gene therapy may have been identified by researchers at Harvard Medical School and Brigham and Women’s Hospital. They studied the specific cell changes that lead to heart failure diseases like dilated cardiomyopathy. “Our findings hold enormous potential for rethinking how we treat heart failure and point to the importance of understanding its

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Discovering a Cure for LMNA

A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here

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Natural History Study Seeks Participants with MYBPC3 Genetic Mutation

​Tenaya Therapeutics, a biotechnology company committed to discovering, developing, and delivering curative therapies that address the underlying causes of heart disease, is sponsoring a study to better understand pediatric cardiomyopathy due to the MYBPC3 mutation. The MyClimb Natural History Study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents <18

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Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center

Major research is being conducted on the genetics of DCM right in our own backyard. Researchers at the Ohio State University’s Wexner Medical Center and College of Medicine classified 19 genes associated with DCM.⁠ ⁠ DCM Foundation board member, Dr. Ray Hershberger, was involved in the research and said, “This was a great example of

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