Blog

One Family’s Story of Genetic Cardiomyopathy – Awareness is Key

Posted on March 28, 2023

Lea Geli’s story is one that spans three generations and it epitomizes how important it is for doctors and patients alike to be aware of the genetic risks of cardiomyopathy. Lea knew heart failure caused her father’s passing, but didn’t know the details. He was relatively private in his own life and didn’t share many

Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives

Posted on March 20, 2023

Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to

Finding a Hereditary Link After Being Diagnosed with DCM at Age 40

Posted on February 21, 2023

Leading up to the exciting launch of the Genetic Cardiomyopathy Awareness Consortium during our March 8th webinar, we thought it fitting to share Andrea’s story of learning that she has genetic DCM and how this has potentially saved her life… Andrea was recently diagnosed with genetic DCM at age 40, despite not having any symptoms.

Get involved in Heart Failure Awareness Week 2023!

Posted on February 7, 2023

February 12-18, 2023 is National Heart Failure Awareness Week! Join HFSA as we promote heart failure awareness, patient education, and heart failure prevention. This year’s theme of Heart Success: Function Not Failure will shed light on all that can be done to treat heart failure (HF) based on how a patient’s heart is functioning. Learn more about

New & Improved DCMF Website Navigation – Easier to Find What You Need

Posted on January 30, 2023

The DCM Foundation website has been reorganized to provide you with faster and easier access to the information you need. This website provides the most current information and resources available to DCM patients and their families. The redesigned homepage gives you links to access important information about DCM including Symptoms, Stages, Arrhythmias, Causes, and Genetics

Cardiomyopathy & Genetics: Get the Facts & Save Lives

Posted on January 23, 2023

Join us for a very special webinar on March 8th as we announce the formation of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) and the launch of our awareness campaign. The GCAC is a collaboration of 8 U.S. based cardiomyopathy patient groups and sponsored by six biopharma companies to raise awareness about the need for genetic

Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice

Posted on January 20, 2023

Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.

Heart Failure Awareness Week is Feb 12th – 18th

Posted on January 2, 2023

Heart Failure Awareness Week is taking place February 12th – 18th, 2023. Hosted by our partner, the Heart Failure Society of America, Heart Failure Awareness Week is the perfect place to connect with other patients facing the same challenges and treatments. Here’s what’s happening this week: Share your story using #MyHFStory2023 on Instagram or Facebook.

Happy Holidays and Thank You!

Posted on December 22, 2022