Blog

DCM & Heart Transplant – 3 Patient Stories

Posted on September 21, 2023

Please click on this link or the image above to view a recording of this webinar and learn about: Heart Transplant Overview A New Heart Transport Technology Stories from Heart Transplant Patients Live Panel Q&A Additional Heart Transplant Resources & Information: Click here to view a more detailed webinar called “The Heart Transplant Journey – What You

Jim’s DCM Story – “The Hardcore Battle.”

Posted on August 3, 2023

“My story is the hardcore battle.” Jim Hogan has been fighting that battle since he was diagnosed with non-ischemic DCM in December 2021. The six months after his diagnosis were hard because he thought he only had a year to live. He got his affairs in order and started to disappear: he lost weight, sold

DCM Basics – Causes, Symptoms and Treatments

Posted on July 20, 2023

Please click on this link or the image above to view a recording of this webinar and learn about: Causes of DCM Symptoms of DCM and How is DCM Diagnosed Stages of Heart Failure Common Treatments for DCM Q&A Session with a Cardiologist Additional Resources & Information: Treatments for DCM: https://dcmfoundation.org/living-with-dcm/treatments-for-dcm All DCMF Recorded Webinars: https://dcmfoundation.org/webinars-news/recorded-webinars Genetics and

Amazing Gene Discovery & Treatment for Infantile DCM

Posted on July 18, 2023

Good news! Researchers at the University of Maryland School of Medicine identified a new cause of infantile DCM and reversed the effects of the mutation. “In an effort to determine the cause behind a rare condition that causes heart failure in children, University of Maryland School of Medicine (UMSOM) researchers have identified new gene mutations responsible

DCM Clinical Trial Now Enrolling

Posted on July 3, 2023

Clinical Trial Now Enrolling for Patients with Dilated Cardiomyopathy (DCM) due to Genetic Mutations or Unknown Causes Bristol Myers Squibb is conducting a clinical trial in patients with DCM due to genetic mutations or unknown causes. Details of the study and eligibility requirements are listed below and participating in such research can help advance therapies

Cardiomyopathy, Genetics, and YOU – webinar

Posted on June 27, 2023

Please click on this link or the image above to view a recording of this webinar and learn about: Cardiomyopathy, Genetics, and YOU Getting Better Care: How to find the best doctor(s) for your care and why this is so important Getting More Involved: Learn how patients can get more involved in the Genetic Cardiomyopathy

Genetic Cardiomyopathy Awareness Week

Posted on June 22, 2023

Genetic Cardiomyopathy Awareness Consortium (GCAC) is Proud to Support Global Heart Hub in Their Second Annual Cardiomyopathy Awareness Week Columbus, Ohio, 26 June, 2023 – The Genetic Cardiomyopathy Awareness Consortium (“GCAC”) is excited to partner with Global Heart Hub to support the second annual Cardiomyopathy Awareness Week, taking place June 26 – July 2, 2023. This

Meet Our New Director of Patient and Family Services – Adam Burkhart

Posted on June 5, 2023

We are thrilled to announce that Adam Burkhart has joined the DCM Foundation as Director of Patient and Family Services. In this full-time position, Adam will support DCM patients by creating, implementing, and running the Foundation’s patient and family services and programs. Adam has a wide background of experience. He worked as a plumber/pipefitter for

“Why Genetics Matter” Webinar Recording Available

Posted on May 30, 2023

The Global Heart Hub held a webinar earlier this spring entitled: “Why Genetics Matter.” The recording of this webinar is now available to view – please click here to watch the webinar. Additional details are below. Speakers: Prof James Ware – an expert in the field of genetics at Imperial College London Ellie Quinn –