Please click on this link or the image above to view a recording of this webinar and learn about: Insights & Hope When Living with a Device – Types of Devices (ICD / SICD / CRT) – Criteria to Get a Device – Why Get a Device – Fears & Anxiety – Recovery from Implantation Procedure
Blog
Living with Cardiomyopathy: Lily’s Story of Strength and Resilience
Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up. Her heart didn’t limit activity her until she
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Gene Therapy Clinical Trials for Genetic Cardiomyopathies
Please click on this link or the image above to view a recording of this webinar and learn about: Gene Therapy Clinical Trials for Genetic Cardiomyopathies What is a gene therapy clinical trial and how does it differ from other trials Phases of gene therapy trials in the US Potential considerations and support How to identify
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Global Heart Hub urges people to “Think Cardiomyopathy” with new Global Campaign
June 4, 2024 – News from the Global Heart Hub Global Heart Hub (GHH), the international alliance of heart patient organisations, today launches its 2024 Cardiomyopathy Awareness Campaign, along with cardiomyopathy patient organisations across the globe. Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down
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DCM Foundation: Progress to Date and Hope for the Future
Please click on this link or the image above to view a recording of this webinar and learn about: DCM Foundation: Progress to Date and Hope for the Future History and growth of DCMF Why we created the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) Progress to date with DCMF and “GCAC” What must still be accomplished to
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Stephanie Fallon’s Story – Living Well with DCM Since Age 15
We’re honored to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt, persevere, and live life to the fullest each and every day. Stephanie was born with
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GCAC Expands Reach to Serve More Cardiomyopathy Patients
COLUMBUS, OHIO, UNITED STATES, April 11, 2024 /EINPresswire.com/ — FOR IMMEDIATE RELEASE DUBLIN, OH. April 11, 2024. – The Genetic Cardiomyopathy Awareness Consortium (GCAC), launched by the DCM Foundation, has embarked on an aggressive campaign to increase awareness of cardiomyopathy and encourage more people to get genetically tested. During a recent webinar, GCAC representatives introduced the new
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Greg’s DCM Story Featured in WVA Living Magazine
Greg Ruf, Founder and Executive Director of the DCM Foundation, was recently interviewed by WVA Living Magazine to share his life’s journey with DCM and increase awareness about cardiomyopathy. Read the full story HERE. Greg continues his work to forward the mission and goals of the DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium
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Fight Cardiomyopathy: Join the Advocacy Army and Save Lives!
Cardiomyopathy is a serious heart condition, and many people are battling it every day. The Genetic Cardiomyopathy Awareness Consortium (GCAC) is fighting back! Our mission is to raise awareness and encourage genetic testing for cardiomyopathy patients and their families. This will not only save lives but also accelerate research for better treatments. Become a Hero: Spread
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Help Us Save Lives – Become an Advocate
Please click on this link or the image above to view a recording of this webinar. Learn how you can become part of the GCAC Advocacy Army to help spread the word about genetic cardiomyopathy. Help us SAVE LIVES! Please click HERE to join us in this fight!