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Stephanie Fallon’s Story – Living Well with DCM Since Age 15

We’re honored to be able to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt and persevere.  Stephanie was born with DCM but wasn’t diagnosed until she

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Cardiomyopathy Awareness Week – Signs & Symptoms of Cardiomyopathy

This week is Cardiomyopathy Awareness Week, a campaign led by the Cardiomyopathy Patient Council of the Global Heart Hub. This week, we aim to raise awareness and improve understanding of the disease, with a view to enabling people to live well with the condition. We hope that you will share the information below with others

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COVID-19 Vaccines & Heart Failure – Update

“Vaccination against SARS-CoV-2 provides substantial benefits in people with heart failure but many of these high-risk patients are hesitant to get vaccinated, new research suggests…” Please click here to read the full article.

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Shane’s Life Saving Heart Transplant

“Shane Smith (28) has shared his story as a reminder of how life-changing organ donation can be. At the age of 14, Shane was diagnosed with a mild heart condition and within a year, his life depended on a heart transplant…” To read about Shane’s experience with DCM and heart transplant – please click here.

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HFSA Virtual Heart Failure Patient & Caregiver Day

If you missed this year’s Heart Failure Patient & Caregiver Day, held virtually on February 12, all session recordings are now available OnDemand. To view the presentation segments, please click here: https://hfsa.org/hfsa-virtual-heart-failure-patient-and-caregiver-day-2022/hfsa-virtual-heart-failure-patient To learn more about the Heart Failure Society of America please visit: www.hfsa.org. 

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Heart Failure Awareness Week

This week is Heart Failure Awareness Week. This campaign aims to raise awareness of heart failure and highlight what it is like to live with heart failure. The DCM Foundation is proud to support this campaign, led by the Heart Failure Patient Council* of the Global Heart Hub. Heart failure is a serious chronic condition,

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Prioritizing Your Heart Health

Don’t miss this excellent panel discussion recording about the important topic of prioritizing your heart health. This discussion focuses on how to detect and communicate new or changing symptoms of cardiovascular conditions. Now, more than ever, it is important to seek timely medical help when experiencing a change in symptoms. Discussion panel members include: Dr. Sarah

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Discovering a Cure for LMNA

A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here

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Honor a Genetic Counselor

For people with genetically linked conditions, genetic counselors can be a lifeline of information, support and compassion, so we wanted to let you know about the Heart of Genetic Counseling Award that honors excellence inpatient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey. If you want

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Diagnosed with DCM at 40 – A Hereditary Link?

Meet Andrea, who was recently diagnosed with genetic DCM at age 40, despite not having any symptoms. Andrea’s family experience with DCM started when her father was diagnosed with a reduced ejection fraction in his late 30s. For decades he lived an energetic life —running three miles a day until his mid- 60s—with asymptomatic DCM. He

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