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Thank you to Dr. James Priest from Tenaya Therapeutics

We’d like to say thank you to Dr. James Priest for being our guest presenter on this month’s DCM Foundation webinar, “The Science Behind DCM Gene Therapies – and Tenaya’s Quest to make it Affordable for All”. Dr. Priest is a pediatric cardiologist and the Senior Director of Cardiovascular Genetics at Tenaya Therapeutics. As he

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Finding Help for Anxiety Associated with DCM

Some medical practices or hospitals have support groups where patients can gather to discuss in person their situations. Check out the resources available in your area, or online and get involved. You’ll be better for it, and probably help someone else experiencing the same feelings as you have. Support groups on social media may also

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Benefits of Genetic Testing

Research has shown that about 1/3 of all adults in the US will develop some form of heart condition during their lifetimes. Some heart conditions are due to hereditary factors. Click here to learn about the benefits of genetic testing, how it can help you, and who should consider being tested.

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Understanding the Relationship Between Central Sleep Apnea and DCM

A recent article published by Respicardia highlights the relationship between central sleep apnea and heart health. As the article states: “Sleep apnea is very common in patients with heart problems. In fact, it affects up to half of patients with heart failure and/or atrial fibrillation.1,2 Sleep apnea may worsen some of the symptoms that cardiologists hear

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Researching Cures for Inherited Cardiomyopathies

⁠ Our peers at Cardiomyopathy UK are working alongside CureHeart to develop the first cures for inherited cardiomyopathies, like DCM. ⁠ You can support this extraordinary effort. Please watch this YouTube video to learn more: https://bit.ly/3Bxm1MU

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Recall of 48,000 Boston Scientific pacemakers, CRT-Ps

“The FDA has announced that Boston Scientific is recalling 48,000 INGENIO pacemakers and cardiac resynchronization therapy pacemakers (CRT-Ps). The recall is due to potential issues when the devices transition to safety mode….” To read the full article, please click here. (Shared from Cardiovascular Business, August 6, 2021)

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Stages of Heart Failure

DCM patients and their family members often have questions regarding the stages of Heart Failure. Heart failure is a constellation of signs and symptoms that can be caused by DCM. There are many disease conditions that can cause DCM and other types of cardiomyopathy. Symptom severity of heart failure is classified and categorized by the

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Update: 28 Apple Products that May Interfere with Medical Devices

This article is a follow-up to our most recent article regarding the potential for Apple devices to interfere with medical devices. On June 25, 2021, Apple released an updated list of its products that may interfere with medical devices, stating: “Under certain conditions, magnets and electromagnetic fields may interfere with medical devices… For example, implanted

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Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center

Major research is being conducted on the genetics of DCM right in our own backyard. Researchers at the Ohio State University’s Wexner Medical Center and College of Medicine classified 19 genes associated with DCM.⁠ ⁠ DCM Foundation board member, Dr. Ray Hershberger, was involved in the research and said, “This was a great example of

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An Important Update on Apple iPhone Interference with IEDs

As we reported back in February, newer models of smartphones, such as the iPhone 12, can interfere with the operation of cardiac implantable electronic devices (CIEDs) if the phone is placed in close proximity to the device or over the device. As per the latest study referenced below, “Magnet wireless charging is being utilized increasingly

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