felt Thanks
Please click on this link or the image above to view a recording of this webinar and learn about: Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families. Learn about Mended Hearts, the great services they provide, and how DCMF/GCAC and Mended Hearts are teaming up to help improve the lives of cardiomyopathy patients. Topics
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Have you heard? The #HEARTSAct2024 needs YOUR support! This crucial legislation will provide schools with resources for cardiomyopathy education, awareness, and prevention. This legislation could help thousands of people recognize their disease and avoid early death. Contact your Congressperson NOW & urge them to support HR 6829. Together, we can make a difference! Click the links
Fred, a successful entrepreneur and philanthropist, recently shared his inspiring story of immigrating to the United States, overcoming personal challenges, and advocating for those affected by dilated cardiomyopathy (DCM). Born and raised in Argentina, Fred immigrated to Miami at the age of 14. Fred found himself homeless at the age of 18, but he embraced
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Please click on this link or the image above to view a recording of this webinar and learn about: Insights & Hope When Living with a Device – Types of Devices (ICD / SICD / CRT) – Criteria to Get a Device – Why Get a Device – Fears & Anxiety – Recovery from Implantation Procedure
Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up. Her heart didn’t limit activity her until she
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Please click on this link or the image above to view a recording of this webinar and learn about: Gene Therapy Clinical Trials for Genetic Cardiomyopathies What is a gene therapy clinical trial and how does it differ from other trials Phases of gene therapy trials in the US Potential considerations and support How to identify
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June 4, 2024 – News from the Global Heart Hub Global Heart Hub (GHH), the international alliance of heart patient organisations, today launches its 2024 Cardiomyopathy Awareness Campaign, along with cardiomyopathy patient organisations across the globe. Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down
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Please click on this link or the image above to view a recording of this webinar and learn about: DCM Foundation: Progress to Date and Hope for the Future History and growth of DCMF Why we created the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) Progress to date with DCMF and “GCAC” What must still be accomplished to
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We’re honored to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt, persevere, and live life to the fullest each and every day. Stephanie was born with
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COLUMBUS, OHIO, UNITED STATES, April 11, 2024 /EINPresswire.com/ — FOR IMMEDIATE RELEASE DUBLIN, OH. April 11, 2024. – The Genetic Cardiomyopathy Awareness Consortium (GCAC), launched by the DCM Foundation, has embarked on an aggressive campaign to increase awareness of cardiomyopathy and encourage more people to get genetically tested. During a recent webinar, GCAC representatives introduced the new
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