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Supporting Women with Cardiomyopathy – WomenHeart & DCM Foundation

Please click on this link or the image above to view a recording of this webinar and learn about: Supporting Women with Cardiomyopathy. Learn about WomenHeart, the amazing services they provide, and how DCMF/GCAC and WomenHeart are teaming up to help improve the lives of women with cardiomyopathy. Topics include: Learn about WomenHeart’s efforts to support

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News from Tenaya Therapeutics Regarding their Gene Therapy Clinical Trial for MYBPC3-Associated HCM

Press release excerpt: “Tenaya Therapeutics Announces Updates on TN-201 Gene Therapy Program for MYBPC3-associated HCM Independent Data Safety and Monitoring Board Endorsed Dose Escalation and Broadening of Eligibility Criteria; Cohort 2 Now Enrolling Initial Data from Cohort 1 to be Reported in December 2024 Highlights Recently Presented Insights on Pediatric MYBPC3-associated HCM Disease Burden SOUTH SAN FRANCISCO, Calif.,

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Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families

Please click on this link or the image above to view a recording of this webinar and learn about: Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families. Learn about Mended Hearts, the great services they provide, and how DCMF/GCAC and Mended Hearts are teaming up to help improve the lives of cardiomyopathy patients. Topics

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#HEARTSAct2024 Needs YOUR support!

Have you heard? The #HEARTSAct2024 needs YOUR support! This crucial legislation will provide schools with resources for cardiomyopathy education, awareness, and prevention. This legislation could help thousands of people recognize their disease and avoid early death. Contact your Congressperson NOW & urge them to support HR 6829. Together, we can make a difference! Click the links

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Fred’s Journey: From Argentina to the U.S. to Championing DCM Awareness

Fred, a successful entrepreneur and philanthropist, recently shared his inspiring story of immigrating to the United States, overcoming personal challenges, and advocating for those affected by dilated cardiomyopathy (DCM).  Born and raised in Argentina, Fred immigrated to Miami at the age of 14. Fred found himself homeless at the age of 18, but he embraced

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Living with Cardiomyopathy: Lily’s Story of Strength and Resilience

Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up.  Her heart didn’t limit activity her until she

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Global Heart Hub urges people to “Think Cardiomyopathy” with new Global Campaign

June 4, 2024 – News from the Global Heart Hub Global Heart Hub (GHH), the international alliance of heart patient organisations, today launches its 2024 Cardiomyopathy Awareness Campaign, along with cardiomyopathy patient organisations across the globe. Cardiomyopathy is a disease of the heart muscle that can occur at any age and can be passed down

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