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First DCM Patient and Family Conference – a Great Success

The first-ever DCM Patient and Family Conference was held virtually on September 24, 2022. This well-attended event included 3 sessions: DCM Education, The Latest in DCM Research and Therapies, and Patient Panel Discussions. (See below for recording links.) We would like to give special thanks to all the DCM patients and family members who registered

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14-year-old DCM & Heart Transplant Patient Promotes Organ Donation

Max was eight when he was diagnosed with DCM. He’s received a heart transplant and now, at age 14, is campaigning for organ donation. He’s evidence of the fact that you can overcome hardship and make a difference at any age. Click here to read Max’s story: https://bit.ly/3Qpwukq  

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One Woman’s 14+ Year Journey with DCM

Meet Sheila McCarr. She wanted to share her story to advance the DCM Foundation’s mission. Here is her story in her own words: “At the age of 52, I was told that it was highly likely I would need a heart transplant. I had been living with heart disease for many years but this news

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New Potential Targets for Gene Therapy in Heart Failure Patients

New targets for gene therapy may have been identified by researchers at Harvard Medical School and Brigham and Women’s Hospital. They studied the specific cell changes that lead to heart failure diseases like dilated cardiomyopathy. “Our findings hold enormous potential for rethinking how we treat heart failure and point to the importance of understanding its

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Online LMNA Patient Meeting Notice – October 10, 2022

On the 10th of October 2022 the LMNA Cardiac Foundation is organizing an international LMNA Patient Meeting together with the Netherlands Heart Institute. This webinar will focus on patients but family members and industry experts are more than welcome to join as well. This is a free online webinar with some very interesting speakers. The

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First DCM Patient and Family Conference Being Held Virtually 9/24/22

You’re invited to the DCM Patient and Family Virtual Conference. Date: Saturday, September 24, 2022 Time: 11:00 AM – 5:00 PM ET Location: ONLINE via Zoom link We are thrilled to host the first-ever DCM conference designed specifically for DCM patients and their family members. Click here to learn more. On Saturday, September 24 from

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Exciting News from Tenaya Therapeutics

SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Tenaya Therapeutics, Inc. (NASDAQ: TNYA), a biotechnology company with a mission to discover, develop and deliver curative therapies that address the underlying causes of heart disease, today announced that it has completed the build-out and operational launch of its Genetic Medicines Manufacturing Center in Union City, California. Tenaya is advancing a

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Stephanie Fallon’s Story – Living Well with DCM Since Age 15

We’re honored to be able to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt and persevere.  Stephanie was born with DCM but wasn’t diagnosed until she

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Cardiomyopathy Awareness Week – Signs & Symptoms of Cardiomyopathy

This week is Cardiomyopathy Awareness Week, a campaign led by the Cardiomyopathy Patient Council of the Global Heart Hub. This week, we aim to raise awareness and improve understanding of the disease, with a view to enabling people to live well with the condition. We hope that you will share the information below with others

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COVID-19 Vaccines & Heart Failure – Update

“Vaccination against SARS-CoV-2 provides substantial benefits in people with heart failure but many of these high-risk patients are hesitant to get vaccinated, new research suggests…” Please click here to read the full article.

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