Uncategorized Archives - DCM Foundation

The Importance of Patient Social Media Support Communities

Posted on January 21, 2025

The Journal of Cardiac Failure recently published an article by Heartcharged highlighting the importance of Patient Social Media Support Communities. Read the full article here: https://onlinejcf.com/article/S1071-9164(24)00861-3/fulltext There are numerous online support communities for patients with cardiomyopathy: To join a public DCM support group, please click here. To join a private DCM patient support group, please click here.

#HEARTSAct2024 Needs YOUR support!

Posted on September 23, 2024

Have you heard? The #HEARTSAct2024 needs YOUR support! This crucial legislation will provide schools with resources for cardiomyopathy education, awareness, and prevention. This legislation could help thousands of people recognize their disease and avoid early death. Contact your Congressperson NOW & urge them to support HR 6829. Together, we can make a difference! Click the links

Fred’s Journey: From Argentina to the U.S. to Championing DCM Awareness

Posted on July 31, 2024

Fred, a successful entrepreneur and philanthropist, recently shared his inspiring story of immigrating to the United States, overcoming personal challenges, and advocating for those affected by dilated cardiomyopathy (DCM). Born and raised in Argentina, Fred immigrated to Miami at the age of 14. Fred found himself homeless at the age of 18, but he embraced

Greg’s DCM Story Featured in WVA Living Magazine

Posted on April 10, 2024

Greg Ruf, Founder and Executive Director of the DCM Foundation, was recently interviewed by WVA Living Magazine to share his life’s journey with DCM and increase awareness about cardiomyopathy. Read the full story HERE. Greg continues his work to forward the mission and goals of the DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium

Fight Cardiomyopathy: Join the Advocacy Army and Save Lives!

Posted on March 11, 2024

Cardiomyopathy is a serious heart condition, and many people are battling it every day. The Genetic Cardiomyopathy Awareness Consortium (GCAC) is fighting back! Our mission is to raise awareness and encourage genetic testing for cardiomyopathy patients and their families. This will not only save lives but also accelerate research for better treatments. Become a Hero: Spread

Help Us Save Lives – Become an Advocate

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Please click on this link or the image above to view a recording of this webinar. Learn how you can become part of the GCAC Advocacy Army to help spread the word about genetic cardiomyopathy. Help us SAVE LIVES! Please click HERE to join us in this fight!

Understanding and Navigating DCM – Expert and Patient Perspectives

Posted on January 18, 2024

Please click on this link or the image above to view a recording of this webinar and learn about Dilated Cardiomyopathy from a noted DCM cardiologist and a genetic counselor as well as hear from patients on living well with this disease. Topics Include: DCM Overview The Link Between DCM & Genetics Hear Two DCM Patient

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