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Understanding and Navigating DCM – Expert and Patient Perspectives

Please click on this link or the image above to view a recording of this webinar and learn about Dilated Cardiomyopathy from a noted DCM cardiologist and a genetic counselor as well as hear from patients on living well with this disease. Topics Include: DCM Overview The Link Between DCM & Genetics Hear Two DCM Patient

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Benefits of Genetic Testing of Dilated Cardiomyopathy Patients with Advanced Heart Disease

“COLUMBUS, Ohio – A new study led by researchers at The Ohio State University Wexner Medical Center and College of Medicine shows the benefit of having patients with advanced disease from dilated cardiomyopathy (DCM) undergo genetic testing to help identify the inherited heart muscle disease in family members. Researchers found that DCM patients with advanced heart disease, defined as

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Teaming Up for Children’s Cardiomyopathy Awareness Month

The DCM Foundation Is Teaming up with the Children’s Cardiomyopathy Foundation to Call Attention to a Deadly Heart Disease The DCM Foundation is proud to partner with the Children’s Cardiomyopathy Foundation (CCF) to promote Children’s Cardiomyopathy Awareness Month throughout the month of September. The awareness month calls attention to the signs, symptoms, and risk factors for

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Genetic Cardiomyopathy Awareness Week

Genetic Cardiomyopathy Awareness Consortium (GCAC) is Proud to Support Global Heart Hub in Their Second Annual Cardiomyopathy Awareness Week  Columbus, Ohio, 26 June, 2023 – The Genetic Cardiomyopathy Awareness Consortium (“GCAC”) is excited to partner with Global Heart Hub to support the second annual Cardiomyopathy Awareness Week, taking place June 26 – July 2, 2023. This

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Call for Genetic Cardiomyopathy Patient Videos

Interested in sharing your story of genetic cardiomyopathy to help others? The DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) are looking for short patient videos or written stories about genetic cardiomyopathy to share in our awareness campaign. Please submit a short video or written piece that tells your genetic cardiomyopathy story using the

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One Family’s Story of Genetic Cardiomyopathy – Awareness is Key

Lea Geli’s story is one that spans three generations and it epitomizes how important it is for doctors and patients alike to be aware of the genetic risks of cardiomyopathy. Lea knew heart failure caused her father’s passing, but didn’t know the details. He was relatively private in his own life and didn’t share many

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Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives

Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to

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Finding a Hereditary Link After Being Diagnosed with DCM at Age 40

Leading up to the exciting launch of the Genetic Cardiomyopathy Awareness Consortium during our March 8th webinar, we thought it fitting to share Andrea’s story of learning that she has genetic DCM and how this has potentially saved her life… Andrea was recently diagnosed with genetic DCM at age 40, despite not having any symptoms.

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Info@DCMFoundation.org