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Recorded Webinars
Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives
Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to
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Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice
Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.
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Insights and Hope When Living with a Heart Device
Doug Rachac talks about living with a pacemaker, ICD, or CRTD device. Special guest speakers include Dr. Savona, electrophysiologist, and Julie Mease, NP, from The Ohio State University’s Ross Heart Hospital.
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DCM Patient and Family Conference: Session #3 Patient-to-Patient Panel Discussions
Two DCM Patient Panels discuss: Successfully Living with DCM- Fitness & Nutrition, Heart Transplant – Hope for the Future: Maintaining a Healthy, Productive Life; Panel 2: Self-Advocacy – When to Seek a Second Opinion, Talking with Health Practitioners, Finances and Insurance
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DCM Patient and Family Conference: Session #2 The Latest in DCM Research and Therapies
Potential New Therapies for Dilated Cardiomyopathy – Presentations by Industry Leaders; Industry Panel Discussion: Positive Research and Hope for the Future, Potential Roadblocks, Patient Involvement.
DCM Patient and Family Conference – Session #1: Dilated Cardiomyopathy Education
Dilated Cardiomyopathy Basics (Presenter: Dr. Kathy Crispell) – What is DCM – Diagnosis & Causes – Genetics & DCM; Successfully Navigating a DCM Diagnosis (Presenter: Barbara McKenna-Amos)
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What You Should Know About Cardiomyopathy & SILENT Sleep Apnea
Dr. Robin Germany explains Central Sleep Apnea and its connection to dilated cardiomyopathy.
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DCM Gene Therapy Advancement at Tenaya Therapeutics
Learn about the basics of DCM genetics and the future of DCM gene therapy.
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The Heart Transplant Journey – What You Should Know
Mary Beth Maydosz, a Nurse Practitioner and Certified Heart Transplant Coordinator, will guide us through information about the steps to transplant, surgery, post-transplant monitoring and keys to success. (sponsored by CareDx)
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Causes of DCM & Stages of Heart Failure
Heart Failure Cardiologist, Dr. Kathy Crispell, discusses the causes of dilated cardiomyopathy and Stages of Heart Failure.