Meet Adam Burkhart, a patient with familial dilated cardiomyopathy. Adam says that his story truly began in 1968 when his aunt died at the age of 13. That was the start of his family’s reckoning with familial dilated cardiomyopathy. Everyone born in their family until 1988 was tested for gene variants that can cause DCM.
We’d like to introduce you to a member of our DCM community: Kaitlyn Amos. Kaitlyn was raised in Waco, Texas, and grew up playing sports. In the fall of 2006, she went on to study at and play soccer for Baylor University. During freshman year, she started to notice a decrease in stamina and eventually,
We heard you! Many DCM patients and family members have expressed a need for local DCM support groups where they can discuss their shared experiences with dilated cardiomyopathy. As a result of your input, we are excited to announce the DCM Foundation is beginning discussions with a number of DCM hospitals and research centers around
The message is simple and clear – If you are experiencing the symptoms of a heart attack or stroke, don’t delay – Every minute counts. If you have chest pain or other heart symptoms – such as shortness of breath, severe pain in the throat, neck, back, stomach, or shoulders that lasts for more than 15
In the UK there’s a debate about whether heart failure patients should be moved to a higher priority for COVID-19 vaccinations. In the US, priority levels vary by state, but the President has signaled he wants everyone age 16+ to have access to the vaccines quickly. Be sure to learn about vaccines from reliable
Newer models of smartphones, such as the iPhone 12, can interfere with the operation of ICDs if the phone is placed in close proximity to the device or over the device. For your safety and to ensure that the device operates correctly, always remember to keep your phone at least six inches from your device.
On January 13, 2021, Dr. Ray Hershberger, a member of the DCM Foundation Board of Directors, received the first of his two COVID-19 vaccines. To view a brief video of this event, please click here: Dr. Hershberger Receives Covid-19 Vaccine Congratulations Dr. Hershberger and thank-you for your continued care of patients during this challenging time.
The enclosed study published by the American College of Cardiology Foundation was designed to evaluate in-hospital outcomes among patients with a history of heart failure (HF) hospitalized with coronavirus disease-2019 (COVID-19). To read more, please CLICK HERE. The bottom line of this article is that people with a history of heart failure (many or most
Kathy Crispell, MD, Advanced Heart Failure/Transplant Specialist and DCM Foundation Board Member, has a new video message of hope for DCM patients during the COVID-19 pandemic. View the latest update from Dr. Crispell. Please use the DCM Foundation Forums or comment in the space below to ask questions about living with DCM during these interesting times. We
Kathy Crispell, MD, Advanced Heart Failure/Transplant Specialist and DCM Foundation Board Member, has shared video updates for DCM patients during the COVID-19 pandemic. View the latest update from Dr. Crispell. Please use the DCM Foundation Forums or comment in the space below to ask questions about living with DCM during these interesting times. We