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Blog

Discovering a Cure for LMNA

A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here

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Honor a Genetic Counselor

For people with genetically linked conditions, genetic counselors can be a lifeline of information, support and compassion, so we wanted to let you know about the Heart of Genetic Counseling Award that honors excellence inpatient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey. If you want

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Diagnosed with DCM at 40 – A Hereditary Link?

Meet Andrea, who was recently diagnosed with genetic DCM at age 40, despite not having any symptoms. Andrea’s family experience with DCM started when her father was diagnosed with a reduced ejection fraction in his late 30s. For decades he lived an energetic life —running three miles a day until his mid- 60s—with asymptomatic DCM. He

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Healthy Lifestyle Options: Non-Alcoholic Beer

Living a healthy life is important for DCM patients (as it is for everyone). After a DCM diagnosis, many individuals decide to make lifestyle changes to support their health. Such was the case with a family member of Mark Ruf, founder of “NA Beer Club.” When Mark’s father, Greg, was diagnosed with DCM in 2014, he

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Millicent’s Story: DCM & Genetic Testing

Meet Millicent! This is her story in her own words – as initially published on our Facebook page: “On November 5th, 2021, I received news that I had tested positive for a LMNA gene mutation that causes DCM and dangerous arrhythmias. I agreed to testing given my family history of my father’s sudden cardiac arrest

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Patient Perspectives: Go Hard or Go to CR

Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had been active his whole life and who

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Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation and Others

Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation, the Heart Failure Society of  America, and the American Association of Heart Failure  Nurses to Help Increase Awareness of Genetic Heart  Disorders  PHILADELPHIA, PA, February 28, 2022 — Renovacor, Inc. (NYSE: RCOR), a  biotechnology company focused on delivering innovative precision therapies to improve the lives of patients

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HFSA’s Virtual Heart Failure Patient and Caregiver Day – Sat., February 12th 10:00 – 1:15 ET

Join HFSA in promoting the 3rd annual Virtual Heart Failure Patient & Caregiver Day, taking place Saturday, February 12, 2022. #HFPatientDay2022 features interactive educational discussions with leading heart failure experts, a heart-healthy cooking demonstration, an exercise demonstration and more! To register for the event, please click HERE. Registration is complimentary to all heart failure patients, caregivers,

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Woman Vows to “Live Her Best Life” After DCM & Heart Transplant

A 19-year-old mother from Allerton, England was diagnosed with dilated cardiomyopathy and fell very ill when she was pregnant, forcing an early birth via c-section. She received a heart transplant and initially faced complications that kept her in the hospital, but she eventually recovered. Her resolution now is to “live her best life”. Read her whole

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