February 12-18, 2023 is National Heart Failure Awareness Week! Join HFSA as we promote heart failure awareness, patient education, and heart failure prevention. This year’s theme of Heart Success: Function Not Failure will shed light on all that can be done to treat heart failure (HF) based on how a patient’s heart is functioning. Learn more about
Join us for a very special webinar on March 8th as we announce the formation of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) and the launch of our awareness campaign. The GCAC is a collaboration of 8 U.S. based cardiomyopathy patient groups and sponsored by six biopharma companies to raise awareness about the need for genetic
Heart Failure Awareness Week is taking place February 12th – 18th, 2023. Hosted by our partner, the Heart Failure Society of America, Heart Failure Awareness Week is the perfect place to connect with other patients facing the same challenges and treatments. Here’s what’s happening this week: Share your story using #MyHFStory2023 on Instagram or Facebook.
The Global Heart Hub has launched a new webinar series called “Empower.” These quarterly webinars are co-hosted with patient organizations within the GHH affiliate community. The goals of this series are two-fold: 1.) To support the shared commitment to reaching and empowering the global patient community and creating a collective voice. 2.) To focus on
The first-ever DCM Patient and Family Conference was held virtually on September 24, 2022. This well-attended event included 3 sessions: DCM Education, The Latest in DCM Research and Therapies, and Patient Panel Discussions. (See below for recording links.) We would like to give special thanks to all the DCM patients and family members who registered
On the 10th of October 2022 the LMNA Cardiac Foundation is organizing an international LMNA Patient Meeting together with the Netherlands Heart Institute. This webinar will focus on patients but family members and industry experts are more than welcome to join as well. This is a free online webinar with some very interesting speakers. The
You’re invited to the DCM Patient and Family Virtual Conference. Date: Saturday, September 24, 2022 Time: 11:00 AM – 5:00 PM ET Location: ONLINE via Zoom link We are thrilled to host the first-ever DCM conference designed specifically for DCM patients and their family members. Click here to learn more. On Saturday, September 24 from
If you missed this year’s Heart Failure Patient & Caregiver Day, held virtually on February 12, all session recordings are now available OnDemand. To view the presentation segments, please click here: https://hfsa.org/hfsa-virtual-heart-failure-patient-and-caregiver-day-2022/hfsa-virtual-heart-failure-patient To learn more about the Heart Failure Society of America please visit: www.hfsa.org.
Don’t miss this excellent panel discussion recording about the important topic of prioritizing your heart health. This discussion focuses on how to detect and communicate new or changing symptoms of cardiovascular conditions. Now, more than ever, it is important to seek timely medical help when experiencing a change in symptoms. Discussion panel members include: Dr. Sarah
For people with genetically linked conditions, genetic counselors can be a lifeline of information, support and compassion, so we wanted to let you know about the Heart of Genetic Counseling Award that honors excellence inpatient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey. If you want