The DCM Foundation website has been reorganized to provide you with faster and easier access to the information you need. This website provides the most current information and resources available to DCM patients and their families. The redesigned homepage gives you links to access important information about DCM including Symptoms, Stages, Arrhythmias, Causes, and Genetics
Join us for a very special webinar on March 8th as we announce the formation of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) and the launch of our awareness campaign. The GCAC is a collaboration of 8 U.S. based cardiomyopathy patient groups and sponsored by six biopharma companies to raise awareness about the need for genetic
Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.
Heart Failure Awareness Week is taking place February 12th – 18th, 2023. Hosted by our partner, the Heart Failure Society of America, Heart Failure Awareness Week is the perfect place to connect with other patients facing the same challenges and treatments. Here’s what’s happening this week: Share your story using #MyHFStory2023 on Instagram or Facebook.
The Global Heart Hub has launched a new webinar series called “Empower.” These quarterly webinars are co-hosted with patient organizations within the GHH affiliate community. The goals of this series are two-fold: 1.) To support the shared commitment to reaching and empowering the global patient community and creating a collective voice. 2.) To focus on
Doug Rachac talks about living with a pacemaker, ICD, or CRTD device. Special guest speakers include Dr. Savona, electrophysiologist, and Julie Mease, NP, from The Ohio State University’s Ross Heart Hospital.
Adults 19 through 64 Years Old The CDC recommends pneumococcal vaccination for adults 19 through 64 years old who have certain chronic medical conditions or other risk factors, including: Chronic heart disease, congestive heart failure, and cardiomyopathies Ask your doctor if getting a pneumonia vaccine is right for you. To read the full CDC guidelines
“Symptoms of heart disease — the country’s No. 1 killer — may be more subtle and varied in women than in men, according to a review recently published in the American Heart Association journal Circulation. Understanding the differences in symptoms is particularly important for women. Corrine Jurgens, an author of the review and an associate
What is gene therapy and how might it be used for heart disease? In the past few decades, through the efforts of dedicated researchers around the world and initiatives like the Human Genome Project, we have a much better understanding of how variations in our genes can cause or contribute to disease. Nearly 100 disease-associated