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Natural History Study Seeks Participants with MYBPC3 Genetic Mutation

​Tenaya Therapeutics, a biotechnology company committed to discovering, developing, and delivering curative therapies that address the underlying causes of heart disease, is sponsoring a study to better understand pediatric cardiomyopathy due to the MYBPC3 mutation. The MyClimb Natural History Study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents <18

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Advancements in Gene Therapy Manufacturing

By creating scientific forums to foster collaboration and creativity, Tenaya Therapeutics has been able to optimize gene therapy manufacturing. Such advancements can help make gene therapy more accessible and affordable for larger patient populations. Read the full article here: https://www.cellandgenecollaborative.com/doc/the-ties-that-bind-engineering-a-cgt-manufacturing-centric-culture-0001

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BAG3 Mutation Discovery & Gene Therapy Development

The following documentary film demonstrates the discovery of the BAG 3 genetic mutation that can cause DCM and the development of the gene therapy that became Renovacor. Please click here to view the video to learn more: https://vimeo.com/173290791

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November is National Family Health History Month

Genetic research has shown that 20-30% of individuals with DCM may have another affected family member. This is due to family members inheriting the same mutations in the genetic code of one or more genes whose role is key for normal heart muscle function. Genetic testing is now widely available from laboratories. It is recommended

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Unite and be heard at the upcoming Virtual Global Heart Hub Summit!

On the 22nd and 23rd of November, the Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual VIRTUAL Unite Summit, aimed at strengthening the voice of those living with heart disease. Date: Mon/Tues – November 22nd & 23rd (two half-day sessions) Time: 15:00 – 18:00 CET (Click here to check the

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Thank you to Dr. James Priest from Tenaya Therapeutics

We’d like to say thank you to Dr. James Priest for being our guest presenter on this month’s DCM Foundation webinar, “The Science Behind DCM Gene Therapies – and Tenaya’s Quest to make it Affordable for All”. Dr. Priest is a pediatric cardiologist and the Senior Director of Cardiovascular Genetics at Tenaya Therapeutics. As he

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Finding Help for Anxiety Associated with DCM

Some medical practices or hospitals have support groups where patients can gather to discuss in person their situations. Check out the resources available in your area, or online and get involved. You’ll be better for it, and probably help someone else experiencing the same feelings as you have. Support groups on social media may also

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Benefits of Genetic Testing

Research has shown that about 1/3 of all adults in the US will develop some form of heart condition during their lifetimes. Some heart conditions are due to hereditary factors. Click here to learn about the benefits of genetic testing, how it can help you, and who should consider being tested.

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Understanding the Relationship Between Central Sleep Apnea and DCM

A recent article published by Respicardia highlights the relationship between central sleep apnea and heart health. As the article states: “Sleep apnea is very common in patients with heart problems. In fact, it affects up to half of patients with heart failure and/or atrial fibrillation.1,2 Sleep apnea may worsen some of the symptoms that cardiologists hear

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