For people with genetically linked conditions, genetic counselors can be a lifeline of information, support and compassion, so we wanted to let you know about the Heart of Genetic Counseling Award that honors excellence inpatient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey. If you want
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Diagnosed with DCM at 40 – A Hereditary Link?
Meet Andrea, who was recently diagnosed with genetic DCM at age 40, despite not having any symptoms. Andrea’s family experience with DCM started when her father was diagnosed with a reduced ejection fraction in his late 30s. For decades he lived an energetic life —running three miles a day until his mid- 60s—with asymptomatic DCM. He
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Causes of DCM & Stages of Heart Failure
Heart Failure Cardiologist, Dr. Kathy Crispell, discusses the causes of dilated cardiomyopathy and Stages of Heart Failure.
Healthy Lifestyle Options: Non-Alcoholic Beer
Living a healthy life is important for DCM patients (as it is for everyone). After a DCM diagnosis, many individuals decide to make lifestyle changes to support their health. Such was the case with a family member of Mark Ruf, founder of “NA Beer Club.” When Mark’s father, Greg, was diagnosed with DCM in 2014, he
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Millicent’s Story: DCM & Genetic Testing
Meet Millicent! This is her story in her own words – as initially published on our Facebook page: “On November 5th, 2021, I received news that I had tested positive for a LMNA gene mutation that causes DCM and dangerous arrhythmias. I agreed to testing given my family history of my father’s sudden cardiac arrest
Patient Perspectives: Go Hard or Go to CR
Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had been active his whole life and who
DCM Foundation’s Strategic Pillars Unveiled – What this Means for You
Learn about the DCM Foundation’s 3 Pillars: 1.) Information & Education 2.) Patient and Family Support 3.) Genetic Testing Awareness. Learn what this means for DCM patients and their family members.
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Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation and Others
Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation, the Heart Failure Society of America, and the American Association of Heart Failure Nurses to Help Increase Awareness of Genetic Heart Disorders PHILADELPHIA, PA, February 28, 2022 — Renovacor, Inc. (NYSE: RCOR), a biotechnology company focused on delivering innovative precision therapies to improve the lives of patients
DCM study findings highlight need for screening and early intervention for those with family history
Many of those diagnosed with heart failure don’t know that heredity may have contributed to their condition, a trait that they can pass on to their children as well. The disease, called dilated cardiomyopathy, often goes unnoticed and undiagnosed until it becomes life-threatening, but now a new study by researchers at The Ohio State University Wexner
Ask a Heart Failure Specialist
Special guests Dr. Kathy Crispell and Dr. Ray Hershberger answer questions about heart failure resulting from dilated cardiomyopathy.