In part 3 of Greg Ruf’s video story, he shares information about his experience with worsening symptoms caused by DCM.
Read More… from Greg Ruf Video Part 3 – DCM Worsening Symptoms
Blog
Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center
Major research is being conducted on the genetics of DCM right in our own backyard. Researchers at the Ohio State University’s Wexner Medical Center and College of Medicine classified 19 genes associated with DCM. DCM Foundation board member, Dr. Ray Hershberger, was involved in the research and said, “This was a great example of
Read More… from Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center
A DCM Patient Journey – Part 2 – Managing DCM Symptoms after Diagnosis
Greg Ruf, DCM patient, explains “Managing and Measuring DCM Symptoms After Diagnosis”
Read More… from A DCM Patient Journey – Part 2 – Managing DCM Symptoms after Diagnosis
An Important Update on Apple iPhone Interference with IEDs
As we reported back in February, newer models of smartphones, such as the iPhone 12, can interfere with the operation of cardiac implantable electronic devices (CIEDs) if the phone is placed in close proximity to the device or over the device. As per the latest study referenced below, “Magnet wireless charging is being utilized increasingly
Read More… from An Important Update on Apple iPhone Interference with IEDs
Hope for MYH7 & TTN DCM Patients
This short webinar highlights a clinical trial being conducted for DCM patients with the MYH7 or TTN genetic variant. Presented by DCM Foundation in partnership with Bristol Myers Squibb. Clinical Trial Awareness Webinar (MYK 491 006 V3a)
DCM & Women: One Story of Survival & Hope
Guest speaker, Jen Rohe, shares her incredible story of surviving heart failure and stroke after childbirth, the results of a condition called Peripartum Cardiomyopathy (or PPCM) – a form of DCM.
Adam’s Story of Familial Dilated Cardiomyopathy
Meet Adam Burkhart, a patient with familial dilated cardiomyopathy. Adam says that his story truly began in 1968 when his aunt died at the age of 13. That was the start of his family’s reckoning with familial dilated cardiomyopathy. Everyone born in their family until 1988 was tested for gene variants that can cause DCM.
Read More… from Adam’s Story of Familial Dilated Cardiomyopathy
Greg Ruf’s DCM Story Part 1 Leading up to Diagnosis
Greg Ruf’s Story – Part 1 of his experience with dilated cardiomyopathy. Through a series of videos, he will talk through his life before DCM, his diagnosis, his life after being diagnosed, and his health today. We hope it provides an insight into one patient’s journey with the disease while providing a connection with someone
Read More… from Greg Ruf’s DCM Story Part 1 Leading up to Diagnosis
From Athlete to DCM Diagnosis and Heart Transplant at age 30 – A story of HOPE
We’d like to introduce you to a member of our DCM community: Kaitlyn Amos. Kaitlyn was raised in Waco, Texas, and grew up playing sports. In the fall of 2006, she went on to study at and play soccer for Baylor University. During freshman year, she started to notice a decrease in stamina and eventually,
Read More… from From Athlete to DCM Diagnosis and Heart Transplant at age 30 – A story of HOPE
Establishing Local DCM Support Groups
We heard you! Many DCM patients and family members have expressed a need for local DCM support groups where they can discuss their shared experiences with dilated cardiomyopathy. As a result of your input, we are excited to announce the DCM Foundation is beginning discussions with a number of DCM hospitals and research centers around