Don’t miss this excellent panel discussion recording about the important topic of prioritizing your heart health. This discussion focuses on how to detect and communicate new or changing symptoms of cardiovascular conditions. Now, more than ever, it is important to seek timely medical help when experiencing a change in symptoms. Discussion panel members include: Dr. Sarah
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Discovering a Cure for LMNA
A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here
Honor a Genetic Counselor
For people with genetically linked conditions, genetic counselors can be a lifeline of information, support and compassion, so we wanted to let you know about the Heart of Genetic Counseling Award that honors excellence inpatient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey. If you want
Diagnosed with DCM at 40 – A Hereditary Link?
Meet Andrea, who was recently diagnosed with genetic DCM at age 40, despite not having any symptoms. Andrea’s family experience with DCM started when her father was diagnosed with a reduced ejection fraction in his late 30s. For decades he lived an energetic life —running three miles a day until his mid- 60s—with asymptomatic DCM. He
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Causes of DCM & Stages of Heart Failure
Heart Failure Cardiologist, Dr. Kathy Crispell, discusses the causes of dilated cardiomyopathy and Stages of Heart Failure.
Healthy Lifestyle Options: Non-Alcoholic Beer
Living a healthy life is important for DCM patients (as it is for everyone). After a DCM diagnosis, many individuals decide to make lifestyle changes to support their health. Such was the case with a family member of Mark Ruf, founder of “NA Beer Club.” When Mark’s father, Greg, was diagnosed with DCM in 2014, he
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Millicent’s Story: DCM & Genetic Testing
Meet Millicent! This is her story in her own words – as initially published on our Facebook page: “On November 5th, 2021, I received news that I had tested positive for a LMNA gene mutation that causes DCM and dangerous arrhythmias. I agreed to testing given my family history of my father’s sudden cardiac arrest
Patient Perspectives: Go Hard or Go to CR
Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had been active his whole life and who
DCM Foundation’s Strategic Pillars Unveiled – What this Means for You
Learn about the DCM Foundation’s 3 Pillars: 1.) Information & Education 2.) Patient and Family Support 3.) Genetic Testing Awareness. Learn what this means for DCM patients and their family members.
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Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation and Others
Renovacor Announces Partnerships with the Dilated Cardiomyopathy Foundation, the Heart Failure Society of America, and the American Association of Heart Failure Nurses to Help Increase Awareness of Genetic Heart Disorders PHILADELPHIA, PA, February 28, 2022 — Renovacor, Inc. (NYSE: RCOR), a biotechnology company focused on delivering innovative precision therapies to improve the lives of patients