felt Thanks
Genetic research has shown that 20-30% of individuals with DCM may have another affected family member. This is due to family members inheriting the same mutations in the genetic code of one or more genes whose role is key for normal heart muscle function. Genetic testing is now widely available from laboratories. It is recommended
Read More… from November is National Family Health History Month
On the 22nd and 23rd of November, the Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual VIRTUAL Unite Summit, aimed at strengthening the voice of those living with heart disease. Date: Mon/Tues – November 22nd & 23rd (two half-day sessions) Time: 15:00 – 18:00 CET (Click here to check the
Read More… from Unite and be heard at the upcoming Virtual Global Heart Hub Summit!
We’d like to say thank you to Dr. James Priest for being our guest presenter on this month’s DCM Foundation webinar, “The Science Behind DCM Gene Therapies – and Tenaya’s Quest to make it Affordable for All”. Dr. Priest is a pediatric cardiologist and the Senior Director of Cardiovascular Genetics at Tenaya Therapeutics. As he
Read More… from Thank you to Dr. James Priest from Tenaya Therapeutics
How to prepare yourself for a heart transplant.
Some medical practices or hospitals have support groups where patients can gather to discuss in person their situations. Check out the resources available in your area, or online and get involved. You’ll be better for it, and probably help someone else experiencing the same feelings as you have. Support groups on social media may also
Read More… from Finding Help for Anxiety Associated with DCM
Learn more about the science of DCM gene therapies (and Tenaya’s quest to make it affordable for all) with Dr. James Priest from Tenaya Therapeutics.
Doug Rachac presents information regarding living with a pacemaker or ICD.
Research has shown that about 1/3 of all adults in the US will develop some form of heart condition during their lifetimes. Some heart conditions are due to hereditary factors. Click here to learn about the benefits of genetic testing, how it can help you, and who should consider being tested.
A recent article published by Respicardia highlights the relationship between central sleep apnea and heart health. As the article states: “Sleep apnea is very common in patients with heart problems. In fact, it affects up to half of patients with heart failure and/or atrial fibrillation.1,2 Sleep apnea may worsen some of the symptoms that cardiologists hear
Read More… from Understanding the Relationship Between Central Sleep Apnea and DCM
Our peers at Cardiomyopathy UK are working alongside CureHeart to develop the first cures for inherited cardiomyopathies, like DCM. You can support this extraordinary effort. Please watch this YouTube video to learn more: https://bit.ly/3Bxm1MU
Read More… from Researching Cures for Inherited Cardiomyopathies
