Learn about DCM & Heart Transplant from 3 DCM patients and heart transplant recipients.
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BAG3 Mutation Discovery & Gene Therapy Development
The following documentary film demonstrates the discovery of the BAG 3 genetic mutation that can cause DCM and the development of the gene therapy that became Renovacor. Please click here to view the video to learn more: https://vimeo.com/173290791
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November is National Family Health History Month
Genetic research has shown that 20-30% of individuals with DCM may have another affected family member. This is due to family members inheriting the same mutations in the genetic code of one or more genes whose role is key for normal heart muscle function. Genetic testing is now widely available from laboratories. It is recommended
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Unite and be heard at the upcoming Virtual Global Heart Hub Summit!
On the 22nd and 23rd of November, the Global Heart Hub is bringing together the cardiovascular patient community from across the world for its first annual VIRTUAL Unite Summit, aimed at strengthening the voice of those living with heart disease. Date: Mon/Tues – November 22nd & 23rd (two half-day sessions) Time: 15:00 – 18:00 CET (Click here to check the
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Thank you to Dr. James Priest from Tenaya Therapeutics
We’d like to say thank you to Dr. James Priest for being our guest presenter on this month’s DCM Foundation webinar, “The Science Behind DCM Gene Therapies – and Tenaya’s Quest to make it Affordable for All”. Dr. Priest is a pediatric cardiologist and the Senior Director of Cardiovascular Genetics at Tenaya Therapeutics. As he
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Greg’s post-transplant summary. Prepare for the transplant: Physically, spiritually, emotionally.
How to prepare yourself for a heart transplant.
Finding Help for Anxiety Associated with DCM
Some medical practices or hospitals have support groups where patients can gather to discuss in person their situations. Check out the resources available in your area, or online and get involved. You’ll be better for it, and probably help someone else experiencing the same feelings as you have. Support groups on social media may also
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The Science Behind DCM Gene Therapies
Learn more about the science of DCM gene therapies (and Tenaya’s quest to make it affordable for all) with Dr. James Priest from Tenaya Therapeutics.
Living with a Pacemaker or ICD
Doug Rachac presents information regarding living with a pacemaker or ICD.
Benefits of Genetic Testing
Research has shown that about 1/3 of all adults in the US will develop some form of heart condition during their lifetimes. Some heart conditions are due to hereditary factors. Click here to learn about the benefits of genetic testing, how it can help you, and who should consider being tested.