Learn about the basics of DCM genetics and the future of DCM gene therapy.
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Exciting News from Tenaya Therapeutics
SOUTH SAN FRANCISCO, Calif.–(BUSINESS WIRE)–Tenaya Therapeutics, Inc. (NASDAQ: TNYA), a biotechnology company with a mission to discover, develop and deliver curative therapies that address the underlying causes of heart disease, today announced that it has completed the build-out and operational launch of its Genetic Medicines Manufacturing Center in Union City, California. Tenaya is advancing a
Cardiomyopathy Awareness Week – Signs & Symptoms of Cardiomyopathy
This week is Cardiomyopathy Awareness Week, a campaign led by the Cardiomyopathy Patient Council of the Global Heart Hub. This week, we aim to raise awareness and improve understanding of the disease, with a view to enabling people to live well with the condition. We hope that you will share the information below with others
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Patient Perspectives: Go Hard or Go to CR
By Denise Williams | News & Views Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had
Shane’s Life Saving Heart Transplant
“Shane Smith (28) has shared his story as a reminder of how life-changing organ donation can be. At the age of 14, Shane was diagnosed with a mild heart condition and within a year, his life depended on a heart transplant…” To read about Shane’s experience with DCM and heart transplant – please click here.
The Heart Transplant Journey – What You Should Know
Mary Beth Maydosz, a Nurse Practitioner and Certified Heart Transplant Coordinator, will guide us through information about the steps to transplant, surgery, post-transplant monitoring and keys to success. (sponsored by CareDx) To access the Heart Transplant webinar slide deck, please click here.
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HFSA Virtual Heart Failure Patient & Caregiver Day
If you missed this year’s Heart Failure Patient & Caregiver Day, held virtually on February 12, all session recordings are now available OnDemand. To view the presentation segments, please click here: https://hfsa.org/hfsa-virtual-heart-failure-patient-and-caregiver-day-2022/hfsa-virtual-heart-failure-patient To learn more about the Heart Failure Society of America please visit: www.hfsa.org.
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Heart Failure Awareness Week
This week is Heart Failure Awareness Week. This campaign aims to raise awareness of heart failure and highlight what it is like to live with heart failure. The DCM Foundation is proud to support this campaign, led by the Heart Failure Patient Council* of the Global Heart Hub. Heart failure is a serious chronic condition,
Prioritizing Your Heart Health
Don’t miss this excellent panel discussion recording about the important topic of prioritizing your heart health. This discussion focuses on how to detect and communicate new or changing symptoms of cardiovascular conditions. Now, more than ever, it is important to seek timely medical help when experiencing a change in symptoms. Discussion panel members include: Dr. Sarah
Discovering a Cure for LMNA
A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here