Written by Shawn Lake “We’re all healthy,” says Jane Dittoe Leeuw. “In my family, we don’t consider ourselves to be sick.” That’s a very positive statement, given that Leeuw and her siblings, the Dittoes, all have dilated cardiomyopathy (DCM). One of her three brothers has a transplanted heart and another has continuing problems with arrhythmias.
Blog
Transforming the Lives of People and Families Fighting Heart Disease – with Tenaya Therapeutics
The DCM Foundation and Tenaya Therapeutics explore the future of therapies to treat cardiomyopathy.
Hope for DCM Therapies – with Tenaya Therapeutics
The future of potential DCM therapies is explored.
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Balancing a Busy Schedule, Including a Full-Time Career, While Living with DCM
We continue to use our blog as a space to feature personal stories of individuals and their families who are impacted by dilated cardiomyopathy. This blog post was written by Steve Fietek, an individual who has been living with DCM for many years. Steve shares how he continues to search for balance between this chronic
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Coping with a Chronic Illness: DCM and the Importance of Emotional and Mental Health
My name is Maureen Daniels and I am/was a dilated cardiomyopathy (DCM) patient for over 30 years. I developed cardiomyopathy at age 37, in 1985, and at that time, there was little specific drug treatment. I lived with the disease for 30 years, and was very blessed, as I was declining, to get a heart
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Tips I Have Learned on Paying for ENTRESTO®
In addition to featuring personal stories of individuals and their families who are impacted by dilated cardiomyopathy on this blog, we will also share helpful tips or suggestions related to DCM. This blog post was written by Greg Hershberger, a DCM patient and the Treasurer of the DCM Foundation Board of Directors. Greg shares what
Physical Fitness and DCM
We look forward to using this blog to share personal stories of individuals and their families who are impacted by DCM. This blog post was written by Greg Ruf, a DCM patient, as well as one of the founders and current president of the DCM Foundation. Greg shares how physical activity has remained an important
DCM and Living with a Pacemaker
It’s not uncommon for people with dilated cardiomyopathy or heart failure to require treatment for heart rhythm abnormalities, also called arrhythmias. This treatment may include a pacemaker or implantable cardioverter-defibrillator (ICD), devices that help maintain a regular heartbeat. In the video below, Greg Hershberger, a DCM Foundation Board Member and DCM patient, shares his experience
Welcome
Welcome to the DCM Foundation Blog! We will use this blog to share dilated cardiomyopathy (DCM) patient and family stories, DCM resources, and information from health care professionals. As we launch this blog, we want to tell you a little bit about the DCM Foundation, why we started it, and why it’s so important to our team.