felt Thanks
Dilated cardiomyopathy, DCM, has many causes and can be acquired or genetic. Genetic means a disease-causing change, or “mutation”, has occurred in a relevant gene. That mutation may have occurred in prior generations or may be new as just having happened in a patient 1,2. This type of DCM is called genetic DCM. Research
Read More… from Clinical Trial Now Enrolling for Patients with Genetic DCM (MYH7)
The first-ever DCM Patient and Family Conference was held virtually on September 24, 2022. This well-attended event included 3 sessions: DCM Education, The Latest in DCM Research and Therapies, and Patient Panel Discussions. (See below for recording links.) We would like to give special thanks to all the DCM patients and family members who registered
Read More… from First DCM Patient and Family Conference – a Great Success
Max was eight when he was diagnosed with DCM. He’s received a heart transplant and now, at age 14, is campaigning for organ donation. He’s evidence of the fact that you can overcome hardship and make a difference at any age. Click here to read Max’s story: https://bit.ly/3Qpwukq
Read More… from 14-year-old DCM & Heart Transplant Patient Promotes Organ Donation
Two DCM Patient Panels discuss: Successfully Living with DCM- Fitness & Nutrition, Heart Transplant – Hope for the Future: Maintaining a Healthy, Productive Life; Panel 2: Self-Advocacy – When to Seek a Second Opinion, Talking with Health Practitioners, Finances and Insurance
Read More… from DCM Patient and Family Conference: Session #3 Patient-to-Patient Panel Discussions
Potential New Therapies for Dilated Cardiomyopathy – Presentations by Industry Leaders; Industry Panel Discussion: Positive Research and Hope for the Future, Potential Roadblocks, Patient Involvement.
Dilated Cardiomyopathy Basics (Presenter: Dr. Kathy Crispell) – What is DCM – Diagnosis & Causes – Genetics & DCM; Successfully Navigating a DCM Diagnosis (Presenter: Barbara McKenna-Amos)
Read More… from DCM Patient and Family Conference – Session #1: Dilated Cardiomyopathy Education
Meet Sheila McCarr. She wanted to share her story to advance the DCM Foundation’s mission. Here is her story in her own words: “At the age of 52, I was told that it was highly likely I would need a heart transplant. I had been living with heart disease for many years but this news
New targets for gene therapy may have been identified by researchers at Harvard Medical School and Brigham and Women’s Hospital. They studied the specific cell changes that lead to heart failure diseases like dilated cardiomyopathy. “Our findings hold enormous potential for rethinking how we treat heart failure and point to the importance of understanding its
Read More… from New Potential Targets for Gene Therapy in Heart Failure Patients
On the 10th of October 2022 the LMNA Cardiac Foundation is organizing an international LMNA Patient Meeting together with the Netherlands Heart Institute. This webinar will focus on patients but family members and industry experts are more than welcome to join as well. This is a free online webinar with some very interesting speakers. The
Read More… from Online LMNA Patient Meeting Notice – October 10, 2022
Dr. Robin Germany explains Central Sleep Apnea and its connection to dilated cardiomyopathy.
Read More… from What You Should Know About Cardiomyopathy & SILENT Sleep Apnea
