felt Thanks
The Global Heart Hub has launched a new webinar series called “Empower.” These quarterly webinars are co-hosted with patient organizations within the GHH affiliate community. The goals of this series are two-fold: 1.) To support the shared commitment to reaching and empowering the global patient community and creating a collective voice. 2.) To focus on
Read More… from Global Heart Hub’s New “Empower” Webinar Series
Doug Rachac talks about living with a pacemaker, ICD, or CRTD device. Special guest speakers include Dr. Savona, electrophysiologist, and Julie Mease, NP, from The Ohio State University’s Ross Heart Hospital.
Read More… from Insights and Hope When Living with a Heart Device
Adults 19 through 64 Years Old The CDC recommends pneumococcal vaccination for adults 19 through 64 years old who have certain chronic medical conditions or other risk factors, including: Chronic heart disease, congestive heart failure, and cardiomyopathies Ask your doctor if getting a pneumonia vaccine is right for you. To read the full CDC guidelines
Read More… from Pneumonia Vaccination Guidelines for Cardiomyopathy Patients
“Symptoms of heart disease — the country’s No. 1 killer — may be more subtle and varied in women than in men, according to a review recently published in the American Heart Association journal Circulation. Understanding the differences in symptoms is particularly important for women. Corrine Jurgens, an author of the review and an associate
Read More… from Signs of Heart Disease May be More Subtle in Women than Men
What is gene therapy and how might it be used for heart disease? In the past few decades, through the efforts of dedicated researchers around the world and initiatives like the Human Genome Project, we have a much better understanding of how variations in our genes can cause or contribute to disease. Nearly 100 disease-associated
Baby Alaynah was diagnosed with DCM and beat the odds, receiving a special heart transplant just before her first birthday. “After being diagnosed with severe dilated cardiomyopathy, a 5-month-old infant from Brunswick County was facing an uncertain future. However, she was able to beat the odds after becoming UNC Children’s very first Berlin Heart EXCOR™
Dilated cardiomyopathy, DCM, has many causes and can be acquired or genetic. Genetic means a disease-causing change, or “mutation”, has occurred in a relevant gene. That mutation may have occurred in prior generations or may be new as just having happened in a patient 1,2. This type of DCM is called genetic DCM. Research
Read More… from Clinical Trial Now Enrolling for Patients with Genetic DCM (MYH7)
The first-ever DCM Patient and Family Conference was held virtually on September 24, 2022. This well-attended event included 3 sessions: DCM Education, The Latest in DCM Research and Therapies, and Patient Panel Discussions. (See below for recording links.) We would like to give special thanks to all the DCM patients and family members who registered
Read More… from First DCM Patient and Family Conference – a Great Success
Max was eight when he was diagnosed with DCM. He’s received a heart transplant and now, at age 14, is campaigning for organ donation. He’s evidence of the fact that you can overcome hardship and make a difference at any age. Click here to read Max’s story: https://bit.ly/3Qpwukq
Read More… from 14-year-old DCM & Heart Transplant Patient Promotes Organ Donation
Two DCM Patient Panels discuss: Successfully Living with DCM- Fitness & Nutrition, Heart Transplant – Hope for the Future: Maintaining a Healthy, Productive Life; Panel 2: Self-Advocacy – When to Seek a Second Opinion, Talking with Health Practitioners, Finances and Insurance
Read More… from DCM Patient and Family Conference: Session #3 Patient-to-Patient Panel Discussions
