felt Thanks
Join us for a very special webinar on March 8th as we announce the formation of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) and the launch of our awareness campaign. The GCAC is a collaboration of 8 U.S. based cardiomyopathy patient groups and sponsored by six biopharma companies to raise awareness about the need for genetic
Read More… from Cardiomyopathy & Genetics: Get the Facts & Save Lives
Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.
Read More… from Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice
Heart Failure Awareness Week is taking place February 12th – 18th, 2023. Hosted by our partner, the Heart Failure Society of America, Heart Failure Awareness Week is the perfect place to connect with other patients facing the same challenges and treatments. Here’s what’s happening this week: Share your story using #MyHFStory2023 on Instagram or Facebook.
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The Global Heart Hub has launched a new webinar series called “Empower.” These quarterly webinars are co-hosted with patient organizations within the GHH affiliate community. The goals of this series are two-fold: 1.) To support the shared commitment to reaching and empowering the global patient community and creating a collective voice. 2.) To focus on
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Doug Rachac talks about living with a pacemaker, ICD, or CRTD device. Special guest speakers include Dr. Savona, electrophysiologist, and Julie Mease, NP, from The Ohio State University’s Ross Heart Hospital.
Read More… from Insights and Hope When Living with a Heart Device
Adults 19 through 64 Years Old The CDC recommends pneumococcal vaccination for adults 19 through 64 years old who have certain chronic medical conditions or other risk factors, including: Chronic heart disease, congestive heart failure, and cardiomyopathies Ask your doctor if getting a pneumonia vaccine is right for you. To read the full CDC guidelines
Read More… from Pneumonia Vaccination Guidelines for Cardiomyopathy Patients
“Symptoms of heart disease — the country’s No. 1 killer — may be more subtle and varied in women than in men, according to a review recently published in the American Heart Association journal Circulation. Understanding the differences in symptoms is particularly important for women. Corrine Jurgens, an author of the review and an associate
Read More… from Signs of Heart Disease May be More Subtle in Women than Men
What is gene therapy and how might it be used for heart disease? In the past few decades, through the efforts of dedicated researchers around the world and initiatives like the Human Genome Project, we have a much better understanding of how variations in our genes can cause or contribute to disease. Nearly 100 disease-associated
Baby Alaynah was diagnosed with DCM and beat the odds, receiving a special heart transplant just before her first birthday. “After being diagnosed with severe dilated cardiomyopathy, a 5-month-old infant from Brunswick County was facing an uncertain future. However, she was able to beat the odds after becoming UNC Children’s very first Berlin Heart EXCOR™
