felt Thanks
Lea Geli’s story is one that spans three generations and it epitomizes how important it is for doctors and patients alike to be aware of the genetic risks of cardiomyopathy. Lea knew heart failure caused her father’s passing, but didn’t know the details. He was relatively private in his own life and didn’t share many
Read More… from One Family’s Story of Genetic Cardiomyopathy – Awareness is Key
Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to
Read More… from Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives
Written by Shawn Lake In the Spring of 2018, Sarah Schaff was in Denver to take the first steps toward donating part of her liver to her stepbrother, who had a rare liver condition. She would have a few tests and then head for the Henry Mountains in Utah for a hiking trip. It almost
Leading up to the exciting launch of the Genetic Cardiomyopathy Awareness Consortium during our March 8th webinar, we thought it fitting to share Andrea’s story of learning that she has genetic DCM and how this has potentially saved her life… Andrea was recently diagnosed with genetic DCM at age 40, despite not having any symptoms.
Read More… from Finding a Hereditary Link After Being Diagnosed with DCM at Age 40
February 12-18, 2023 is National Heart Failure Awareness Week! Join HFSA as we promote heart failure awareness, patient education, and heart failure prevention. This year’s theme of Heart Success: Function Not Failure will shed light on all that can be done to treat heart failure (HF) based on how a patient’s heart is functioning. Learn more about
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The DCM Foundation website has been reorganized to provide you with faster and easier access to the information you need. This website provides the most current information and resources available to DCM patients and their families. The redesigned homepage gives you links to access important information about DCM including Symptoms, Stages, Arrhythmias, Causes, and Genetics
Read More… from New & Improved DCMF Website Navigation – Easier to Find What You Need
Join us for a very special webinar on March 8th as we announce the formation of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”) and the launch of our awareness campaign. The GCAC is a collaboration of 8 U.S. based cardiomyopathy patient groups and sponsored by six biopharma companies to raise awareness about the need for genetic
Read More… from Cardiomyopathy & Genetics: Get the Facts & Save Lives
Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.
Read More… from Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice
Heart Failure Awareness Week is taking place February 12th – 18th, 2023. Hosted by our partner, the Heart Failure Society of America, Heart Failure Awareness Week is the perfect place to connect with other patients facing the same challenges and treatments. Here’s what’s happening this week: Share your story using #MyHFStory2023 on Instagram or Facebook.
Read More… from Heart Failure Awareness Week is Feb 12th – 18th
