felt Thanks
Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up. Her heart didn’t limit activity her until she
Read More… from Living with Cardiomyopathy: Lily’s Story of Strength and Resilience
Please click on this link or the image above to view a recording of this webinar and learn about: Heart Transplant Overview A New Heart Transport Technology Stories from Heart Transplant Patients Live Panel Q&A Additional Heart Transplant Resources & Information: Click here to view a more detailed webinar called “The Heart Transplant Journey – What You
Baby Alaynah was diagnosed with DCM and beat the odds, receiving a special heart transplant just before her first birthday. “After being diagnosed with severe dilated cardiomyopathy, a 5-month-old infant from Brunswick County was facing an uncertain future. However, she was able to beat the odds after becoming UNC Children’s very first Berlin Heart EXCOR™
Max was eight when he was diagnosed with DCM. He’s received a heart transplant and now, at age 14, is campaigning for organ donation. He’s evidence of the fact that you can overcome hardship and make a difference at any age. Click here to read Max’s story: https://bit.ly/3Qpwukq
Read More… from 14-year-old DCM & Heart Transplant Patient Promotes Organ Donation
“Shane Smith (28) has shared his story as a reminder of how life-changing organ donation can be. At the age of 14, Shane was diagnosed with a mild heart condition and within a year, his life depended on a heart transplant…” To read about Shane’s experience with DCM and heart transplant – please click here.
A 19-year-old mother from Allerton, England was diagnosed with dilated cardiomyopathy and fell very ill when she was pregnant, forcing an early birth via c-section. She received a heart transplant and initially faced complications that kept her in the hospital, but she eventually recovered. Her resolution now is to “live her best life”. Read her whole
Read More… from Woman Vows to “Live Her Best Life” After DCM & Heart Transplant
Learn about DCM & Heart Transplant from 3 DCM patients and heart transplant recipients.
Read More… from DCMF Webinar: “DCM & Heart Transplant: 3 Patient Stories”
Meet Adam Burkhart, a patient with familial dilated cardiomyopathy. Adam says that his story truly began in 1968 when his aunt died at the age of 13. That was the start of his family’s reckoning with familial dilated cardiomyopathy. Everyone born in their family until 1988 was tested for gene variants that can cause DCM.
Read More… from Adam’s Story of Familial Dilated Cardiomyopathy
We’d like to introduce you to a member of our DCM community: Kaitlyn Amos. Kaitlyn was raised in Waco, Texas, and grew up playing sports. In the fall of 2006, she went on to study at and play soccer for Baylor University. During freshman year, she started to notice a decrease in stamina and eventually,
Read More… from From Athlete to DCM Diagnosis and Heart Transplant at age 30 – A story of HOPE
