DCM Foundation
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Living with Cardiomyopathy: Lily’s Story of Strength and Resilience

Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up.  Her heart didn’t limit activity her until she started experiencing unusual symptoms in gym class during sixth grade.

A Surprising Diagnosis

After a series of tests, including a stress test that revealed alarmingly high heart rates, Lily received the shocking news that it was time to list her for a heart transplant at just 13 years old. The disease had progressed rapidly, and a heart transplant became the only viable option.

A Life-Changing Call


Lily and her family had prepared her for a long wait, potentially a year or more, for a suitable heart donor. But just nine days after being placed on the transplant list, they received an unexpected call. A heart was available,

and Lily’s life was about to change forever.


The Challenges and Triumphs of a Teenager’s Journey

Lily’s surgery was successful, and she began her journey towards recovery. The road wasn’t easy, but with the unwavering support of her extended family and the dedicated care of her medical team, she persevered.

Lily’s story is one of incredible strength and determination. Despite facing numerous personal challenges, including a difficult home life of multiple foster care families and the added complexities of her medical condition, she has remained focused on her health and well-being. Her commitment to maintaining a healthy lifestyle, through exercise and proper nutrition, is an inspiration to all who know her.


After returning home from the hospital, Lily faced additional hurdles because both of her parents struggle with addiction. This led to Lily moving in with her grandmother, who eventually gained custody. Despite these difficulties, Lily’s determination never wavered. She has diligently managed her medications, attended appointments, and actively participated in physical therapy and cardiac rehab.

Embracing a New Life

Lily’s resilience and determination were evident, especially in her Make-A-Wish request. Instead of a typical teenage wish, she asked for a home gym to ensure she could stay healthy and take care of her new heart. This is a true testament to her very mature mindset and her great determination to live the healthiest and fullest life after she received a wonderful second chance in life.

A Message of Hope and Inspiration

Lily’s journey is a testament to the power of the human spirit. She is a shining example of how even in the face of adversity, it’s possible to overcome challenges and embrace a brighter future. Her story is a reminder that with the right support and a positive attitude, anything is possible.

Please help Lily by donating at the link below to help her get the proper training on her new home gym so she can better understand how to exercise safely and optimize her ability to live a long and healthy life. We hope to raise $5,000.00!

Please click the link below to donate:


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7826 Kate Brown Drive
Dublin, Ohio 43017