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One Family’s Story of Genetic Cardiomyopathy – Awareness is Key

Lea Geli’s story is one that spans three generations and it epitomizes how important it is for doctors and patients alike to be aware of the genetic risks of cardiomyopathy. Lea knew heart failure caused her father’s passing, but didn’t know the details. He was relatively private in his own life and didn’t share many

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Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives

Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to

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Finding a Hereditary Link After Being Diagnosed with DCM at Age 40

Leading up to the exciting launch of the Genetic Cardiomyopathy Awareness Consortium during our March 8th webinar, we thought it fitting to share Andrea’s story of learning that she has genetic DCM and how this has potentially saved her life… Andrea was recently diagnosed with genetic DCM at age 40, despite not having any symptoms.

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Gene Therapy for the Heart

What is gene therapy and how might it be used for heart disease? In the past few decades, through the efforts of dedicated researchers around the world and initiatives like the Human Genome Project, we have a much better understanding of how variations in our genes can cause or contribute to disease. Nearly 100 disease-associated

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DCM study findings highlight need for screening and early intervention for those with family history

Many of those diagnosed with heart failure don’t know that heredity may have contributed to their condition, a trait that they can pass on to their children as well. The disease, called dilated cardiomyopathy, often goes unnoticed and undiagnosed until it becomes life-threatening, but now a new study by researchers at The Ohio State University Wexner

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Benefits of Genetic Testing

Research has shown that about 1/3 of all adults in the US will develop some form of heart condition during their lifetimes. Some heart conditions are due to hereditary factors. Click here to learn about the benefits of genetic testing, how it can help you, and who should consider being tested.

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