felt Thanks
Learn helpful health and emotional wellness advice from a DCM patient and a clinical expert. Then, hear about the expanding patient resources the DCM Foundation is working on to support DCM patients in 2023 and beyond.
Read More… from Support for Your DCM Journey – DCMF Programs, Services, and Helpful Advice
The Global Heart Hub has launched a new webinar series called “Empower.” These quarterly webinars are co-hosted with patient organizations within the GHH affiliate community. The goals of this series are two-fold: 1.) To support the shared commitment to reaching and empowering the global patient community and creating a collective voice. 2.) To focus on
Read More… from Global Heart Hub’s New “Empower” Webinar Series
Adults 19 through 64 Years Old The CDC recommends pneumococcal vaccination for adults 19 through 64 years old who have certain chronic medical conditions or other risk factors, including: Chronic heart disease, congestive heart failure, and cardiomyopathies Ask your doctor if getting a pneumonia vaccine is right for you. To read the full CDC guidelines
Read More… from Pneumonia Vaccination Guidelines for Cardiomyopathy Patients
We’re honored to be able to share the story of Stephanie Fallon, a patient advocate and friend of the Foundation. Her story reflects the advancement of DCM awareness and treatment since her diagnosis. Her life is a testament to our ability to adapt and persevere. Stephanie was born with DCM but wasn’t diagnosed until she
Read More… from Stephanie Fallon’s Story – Living Well with DCM Since Age 15
This week is Heart Failure Awareness Week. This campaign aims to raise awareness of heart failure and highlight what it is like to live with heart failure. The DCM Foundation is proud to support this campaign, led by the Heart Failure Patient Council* of the Global Heart Hub. Heart failure is a serious chronic condition,
Don’t miss this excellent panel discussion recording about the important topic of prioritizing your heart health. This discussion focuses on how to detect and communicate new or changing symptoms of cardiovascular conditions. Now, more than ever, it is important to seek timely medical help when experiencing a change in symptoms. Discussion panel members include: Dr. Sarah
Living a healthy life is important for DCM patients (as it is for everyone). After a DCM diagnosis, many individuals decide to make lifestyle changes to support their health. Such was the case with a family member of Mark Ruf, founder of “NA Beer Club.” When Mark’s father, Greg, was diagnosed with DCM in 2014, he
Read More… from Healthy Lifestyle Options: Non-Alcoholic Beer
A 19-year-old mother from Allerton, England was diagnosed with dilated cardiomyopathy and fell very ill when she was pregnant, forcing an early birth via c-section. She received a heart transplant and initially faced complications that kept her in the hospital, but she eventually recovered. Her resolution now is to “live her best life”. Read her whole
Read More… from Woman Vows to “Live Her Best Life” After DCM & Heart Transplant
Some medical practices or hospitals have support groups where patients can gather to discuss in person their situations. Check out the resources available in your area, or online and get involved. You’ll be better for it, and probably help someone else experiencing the same feelings as you have. Support groups on social media may also
Read More… from Finding Help for Anxiety Associated with DCM
A recent article published by Respicardia highlights the relationship between central sleep apnea and heart health. As the article states: “Sleep apnea is very common in patients with heart problems. In fact, it affects up to half of patients with heart failure and/or atrial fibrillation.1,2 Sleep apnea may worsen some of the symptoms that cardiologists hear
Read More… from Understanding the Relationship Between Central Sleep Apnea and DCM
