felt Thanks
Please click on this link or the image above to view a recording of this webinar and learn about the new Genetic Cardiomyopathy Patient Registry. View this webinar to learn about the Genetic Cardiomyopathy Registry, gene specific groups, getting better care, and how you can help support the efforts of the Genetic Cardiomyopathy Consortium. Topics:
Read More… from Important Updates and Information on DCMF GCAC Projects
Please click on this link or the image above to view a recording of this webinar and learn about the new Genetic Cardiomyopathy Patient Registry. View this webinar to learn about the groundbreaking Genetic Cardiomyopathy Registry! Explore how this new initiative aims to revolutionize our understanding of inherited cardiomyopathy. The Genetic Cardiomyopathy Registry was launched
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The Journal of Cardiac Failure recently published an article by Heartcharged highlighting the importance of Patient Social Media Support Communities. Read the full article here: https://onlinejcf.com/article/S1071-9164(24)00861-3/fulltext There are numerous online support communities for patients with cardiomyopathy: To join a public DCM support group, please click here. To join a private DCM patient support group, please click here.
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Celebrating a Win for the Cardiomyopathy Community The DCM Foundation joins the Children’s Cardiomyopathy Foundation (CCF) in celebrating the signing of the Cardiomyopathy Health Education, Awareness, And Research and AED Training in Schools (HEARTS) Act into law by President Biden. This landmark legislation marks a significant step forward in the fight against cardiomyopathy. CCF’s Journey
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Please click on this link or the image above to view a recording of this webinar and learn about: Gene Therapy Breakthroughs for Cardiomyopathies. In this webinar, Dr. Whit Tingley, Tenaya’s Chief Medical Officer, shares updates on Tenaya’s MyPEAK-1 Study for HCM due to a MYBPC3 mutation and their RIDGE-1 Trial for ARVC due to a
As we reflect on 2024, we are filled with gratitude for the incredible generosity of our supporters. Your contributions have been instrumental in advancing the mission of the DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium (GCAC). Together, we’ve achieved impactful milestones, bringing hope and tangible benefits to patients and families affected by dilated cardiomyopathy (DCM)
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We are excited to share an update about Lexeo’s HEROIC PKP2 clinical trial. Results to date highlights of this trial include the following: Completed enrollment of cohort 1 (low dose cohort) in the LX2020 HEROIC-PKP2 Phase 1/2 trial, with three people treated Early data, including safety and PKP2 protein expression, is expected in H1 2025.
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Please click on this link or the image above to view a recording of this webinar and learn about: Supporting Women with Cardiomyopathy. Learn about WomenHeart, the amazing services they provide, and how DCMF/GCAC and WomenHeart are teaming up to help improve the lives of women with cardiomyopathy. Topics include: Learn about WomenHeart’s efforts to support
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Press release excerpt: “Tenaya Therapeutics Announces Updates on TN-201 Gene Therapy Program for MYBPC3-associated HCM Independent Data Safety and Monitoring Board Endorsed Dose Escalation and Broadening of Eligibility Criteria; Cohort 2 Now Enrolling Initial Data from Cohort 1 to be Reported in December 2024 Highlights Recently Presented Insights on Pediatric MYBPC3-associated HCM Disease Burden SOUTH SAN FRANCISCO, Calif.,
Please click on this link or the image above to view a recording of this webinar and learn about: Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families. Learn about Mended Hearts, the great services they provide, and how DCMF/GCAC and Mended Hearts are teaming up to help improve the lives of cardiomyopathy patients. Topics
Read More… from Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families
