Blog

Gene Therapy Breakthroughs for Cardiomyopathies: Insights into Tenaya’s Clinical Trials

Posted on December 19, 2024

Please click on this link or the image above to view a recording of this webinar and learn about: Gene Therapy Breakthroughs for Cardiomyopathies. In this webinar, Dr. Whit Tingley, Tenaya’s Chief Medical Officer, shares updates on Tenaya’s MyPEAK-1 Study for HCM due to a MYBPC3 mutation and their RIDGE-1 Trial for ARVC due to a

Thank You for Your Support: 2024 Impact Highlights

Posted on December 6, 2024

As we reflect on 2024, we are filled with gratitude for the incredible generosity of our supporters. Your contributions have been instrumental in advancing the mission of the DCM Foundation and the Genetic Cardiomyopathy Awareness Consortium (GCAC). Together, we’ve achieved impactful milestones, bringing hope and tangible benefits to patients and families affected by dilated cardiomyopathy (DCM)

Update Regarding Lexeo’s HEROIC PKP2 Clinical Trial

Posted on December 5, 2024

We are excited to share an update about Lexeo’s HEROIC PKP2 clinical trial. Results to date highlights of this trial include the following: Completed enrollment of cohort 1 (low dose cohort) in the LX2020 HEROIC-PKP2 Phase 1/2 trial, with three people treated Early data, including safety and PKP2 protein expression, is expected in H1 2025.

Supporting Women with Cardiomyopathy – WomenHeart & DCM Foundation

Posted on November 2, 2024

Please click on this link or the image above to view a recording of this webinar and learn about: Supporting Women with Cardiomyopathy. Learn about WomenHeart, the amazing services they provide, and how DCMF/GCAC and WomenHeart are teaming up to help improve the lives of women with cardiomyopathy. Topics include: Learn about WomenHeart’s efforts to support

News from Tenaya Therapeutics Regarding their Gene Therapy Clinical Trial for MYBPC3-Associated HCM

Posted on October 28, 2024

Press release excerpt: “Tenaya Therapeutics Announces Updates on TN-201 Gene Therapy Program for MYBPC3-associated HCM Independent Data Safety and Monitoring Board Endorsed Dose Escalation and Broadening of Eligibility Criteria; Cohort 2 Now Enrolling Initial Data from Cohort 1 to be Reported in December 2024 Highlights Recently Presented Insights on Pediatric MYBPC3-associated HCM Disease Burden SOUTH SAN FRANCISCO, Calif.,

Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families

Posted on September 26, 2024

Please click on this link or the image above to view a recording of this webinar and learn about: Mended Hearts & DCM Foundation: Empowering Cardiomyopathy Patients and Families. Learn about Mended Hearts, the great services they provide, and how DCMF/GCAC and Mended Hearts are teaming up to help improve the lives of cardiomyopathy patients. Topics

#HEARTSAct2024 Needs YOUR support!

Posted on September 23, 2024

Have you heard? The #HEARTSAct2024 needs YOUR support! This crucial legislation will provide schools with resources for cardiomyopathy education, awareness, and prevention. This legislation could help thousands of people recognize their disease and avoid early death. Contact your Congressperson NOW & urge them to support HR 6829. Together, we can make a difference! Click the links

Fred’s Journey: From Argentina to the U.S. to Championing DCM Awareness

Posted on July 31, 2024

Fred, a successful entrepreneur and philanthropist, recently shared his inspiring story of immigrating to the United States, overcoming personal challenges, and advocating for those affected by dilated cardiomyopathy (DCM). Born and raised in Argentina, Fred immigrated to Miami at the age of 14. Fred found himself homeless at the age of 18, but he embraced

Insights & Hope When Living with a Device

Posted on July 18, 2024

Please click on this link or the image above to view a recording of this webinar and learn about: Insights & Hope When Living with a Device – Types of Devices (ICD / SICD / CRT) – Criteria to Get a Device – Why Get a Device – Fears & Anxiety – Recovery from Implantation Procedure

Living with Cardiomyopathy: Lily’s Story of Strength and Resilience

Posted on June 20, 2024

Lily was born with a strong heart unlike her two siblings, who required open heart surgery as infants. Lily was initially diagnosed with a simple heart murmur but the restrictive cardiomyopathy gene is in her family. For Lily, regular cardiology check-ups was a part of growing up. Her heart didn’t limit activity her until she