Press release excerpt: “Tenaya Therapeutics Announces Updates on TN-201 Gene Therapy Program for MYBPC3-associated HCM Independent Data Safety and Monitoring Board Endorsed Dose Escalation and Broadening of Eligibility Criteria; Cohort 2 Now Enrolling Initial Data from Cohort 1 to be Reported in December 2024 Highlights Recently Presented Insights on Pediatric MYBPC3-associated HCM Disease Burden SOUTH SAN FRANCISCO, Calif.,
Research
Cardiomyopathy Study Participants Needed for 5 Minute Survey
Are you affected by cardiomyopathy? Please CLICK HERE to access a 5-10 minute survey. Learn more below. CureHeart is developing genetic therapies to treat inherited cardiomyopathy. https://cureheart.org/patients The CureHeart project brings together researchers across the UK, US and Asia, and commercial as well as patient advocacy partners, to develop effective genetic therapies for cardiomyopathies. The
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DCM Clinical Trial Now Enrolling
Clinical Trial Now Enrolling for Patients with Dilated Cardiomyopathy (DCM) due to Genetic Mutations or Unknown Causes Bristol Myers Squibb is conducting a clinical trial in patients with DCM due to genetic mutations or unknown causes. Details of the study and eligibility requirements are listed below and participating in such research can help advance therapies
Myths and Truths About Clinical Trials
Please click on this link or the image above to view a recording of this webinar and learn about: Myths and Truths About Clinical Trials Industry experts discuss the Myths and Truths of Clinical Trials on a panel discussion Learn about the phases and average timeline for clinical trials Hear about the measures taken to ensure
Cardiomyopathy & Genetics Webinar / Launch of “GCAC” – Get the Facts & Save Lives
Learn about the important role of GENETICS in cardiomyopathy and celebrate the LAUNCH of the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). Getting more people genetically tested can save lives and advance therapies! In this webinar, hear from other cardiomyopathy patients and learn about: The role genetics plays in cardiomyopathy How easy and affordable it is to
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New Potential Targets for Gene Therapy in Heart Failure Patients
New targets for gene therapy may have been identified by researchers at Harvard Medical School and Brigham and Women’s Hospital. They studied the specific cell changes that lead to heart failure diseases like dilated cardiomyopathy. “Our findings hold enormous potential for rethinking how we treat heart failure and point to the importance of understanding its
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Discovering a Cure for LMNA
A Scientific Network Session focused on Lamin A/C Cardiomyopathy was held on April 13, 2022. The goal of this session was for LMNA experts to share information regarding current strategies, crazy ideas, and future collaborations to discover a cure for the LMNA genetic mutation. A recording of this session is now available – please click here
Natural History Study Seeks Participants with MYBPC3 Genetic Mutation
Tenaya Therapeutics, a biotechnology company committed to discovering, developing, and delivering curative therapies that address the underlying causes of heart disease, is sponsoring a study to better understand pediatric cardiomyopathy due to the MYBPC3 mutation. The MyClimb Natural History Study is designed to collect and evaluate information on the course of cardiomyopathy in children and adolescents <18
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Researching Cures for Inherited Cardiomyopathies
Our peers at Cardiomyopathy UK are working alongside CureHeart to develop the first cures for inherited cardiomyopathies, like DCM. You can support this extraordinary effort. Please watch this YouTube video to learn more: https://bit.ly/3Bxm1MU
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Major DCM Genetics Research Being Conducted at OSU’s Wexner Medical Center
Major research is being conducted on the genetics of DCM right in our own backyard. Researchers at the Ohio State University’s Wexner Medical Center and College of Medicine classified 19 genes associated with DCM. DCM Foundation board member, Dr. Ray Hershberger, was involved in the research and said, “This was a great example of
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