Meet Millicent! This is her story in her own words – as initially published on our Facebook page: “On November 5th, 2021, I received news that I had tested positive for a LMNA gene mutation that causes DCM and dangerous arrhythmias. I agreed to testing given my family history of my father’s sudden cardiac arrest
Patient Stories & Videos
Patient Perspectives: Go Hard or Go to CR
Greg Ruf will be the first to tell you: he used to be a bit of a fitness fanatic. Okay, “a bit” might be soft-selling it: the 57-year-old was totally an adrenaline junkie. You name it, he did it—running, swimming, cycling, elliptical, strength training. A ball of energy who had been active his whole life and who
Woman Vows to “Live Her Best Life” After DCM & Heart Transplant
A 19-year-old mother from Allerton, England was diagnosed with dilated cardiomyopathy and fell very ill when she was pregnant, forcing an early birth via c-section. She received a heart transplant and initially faced complications that kept her in the hospital, but she eventually recovered. Her resolution now is to “live her best life”. Read her whole
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DCMF Webinar: “DCM & Heart Transplant: 3 Patient Stories”
Learn about DCM & Heart Transplant from 3 DCM patients and heart transplant recipients.
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Greg’s post-transplant summary. Prepare for the transplant: Physically, spiritually, emotionally.
How to prepare yourself for a heart transplant.
Greg Ruf’s 3rd post-heart transplant video – in the hospital awaiting a heart transplant
Greg Ruf shares his thoughts and experiences regarding being in the hospital awaiting a heart transplant due to heart failure complications resulting from DCM.
Greg’s 2nd post-transplant video. The emotional aspects of DCM and facing a heart transplant.
Greg Ruf discusses the emotional aspects of DCM, and the importance of staying positive when facing a heart transplant.
Greg Ruf, DCM patient, 1st post-heart transplant video
DCM patient, Greg Ruf, provides an update in his first of several videos about his heart failure to heart transplant journey.
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Greg Ruf Video Part 4 – CHF and Discussing Heart Transplant
Greg Ruf discusses his congestive heart failure caused by DCM and being placed on the heart transplant list.
Read More… from Greg Ruf Video Part 4 – CHF and Discussing Heart Transplant
Greg Ruf Video Part 3 – DCM Worsening Symptoms
In part 3 of Greg Ruf’s video story, he shares information about his experience with worsening symptoms caused by DCM.
Read More… from Greg Ruf Video Part 3 – DCM Worsening Symptoms