DCM Foundation Overview
Formed in 2017 by a DCM Patient and a noted Heart Failure Cardiologist and DCM Genetic Researcher, the DCM Foundation’s mission is to provide HOPE and support to DCM Patients and Families with Dilated Cardiomyopathy through education, research and advocacy.
Our mission is being executed through three foundational pillars:
- Information and Education
- Patient and Family Support
- Understanding the Need for Genetic Testing
Pillar 1: Information and Education
In 2018, our volunteer Board of four members provided the funding for and began building an informative website on Dilated Cardiomyopathy. This website, www.dcmfoundation.org, was launched in mid-2019 and is considered the most comprehensive website on DCM.
Since then, with the help of great biopharma industry partners, the DCM Foundation now delivers monthly webinars, a monthly newsletter, as well as numerous blogs, videos, and articles to support DCM patients and their family members.
In 2024, we have grown to:
- 4500+ Patients and Family Members
- 5000+ Webinar Registrants and 12,000+ Webinar Recording Views
- Monthly Newsletter list of:
- 4500+ patient/family members and
- 1600+ cardiology professionals
- Social Media reach of 30,000+ DCM Facebook Group members, 60,000+ cardiomyopathy group members, and 40,000 cardiology medical professionals
- 250,000+ DCM Foundation website visits per year
Pillar 2: Patient and Family Support
With the continue to enhance our Patient and Family Support efforts via the following:
- Gene-Specific Facebook Groups: Online peer support groups for cardiomyopathy patients with specific gene mutations to support one another and share information.
- DCM-Specific Facebook Groups: One public group and one private group are dedicated to creating a supportive community for DCM patients and their family members.
- Healthy Together WellnessProgram: ONLINE Group Wellness Support Program for DCM Patients and Families.
- DCM Patient and Family Conference: Annual virtual event with a patient round table, as well as industry and patient speakers on topics affecting DCM patients and families.
- Spanish Website: Launch of a Spanish DCM Foundation website to better serve the Spanish-speaking community.
Launching these programs enables us to better support hundreds of DCM patients and family members while helping them create lasting supportive relationships with other DCM patients, family members, and support professionals.
Pillar 3: Genetic Cardiomyopathy Awareness
In early 2023, through partnerships with other cardiomyopathy patient groups, genetic counseling associations, and BioPharma company supporters, we launched the Genetic Cardiomyopathy Awareness Consortium (“GCAC”). We then created a complete marketing campaign and website (www.geneticcardiomyopathy.org) about the importance of genetic awareness and genetic testing for ALL cardiomyopathy patients and their family members.
In June 2023, the campaign went global through a partnership with the Global Heart Hub. Through this partnership, this campaign was translated into 10 languages in 31 countries.
This campaign has two phases targeting:
- DCM and other Cardiomyopathy Patients and their Families (2023-2024)
- Medical Professionals interacting with DCM patients (2024-2025)
We are driven to continue to grow the DCM Foundation and would be honored if you would join us to create a healthier and happier tomorrow for many more DCM patients and family members.
DCM Foundation Pillars Supporting Our Mission
Note: Sponsorship opportunities are available to support each pillar. Please email us to inquire: gruf@dcmfoundation.org
