Please click on this link or the image above to view a recording of this webinar and learn about the new Genetic Cardiomyopathy Patient Registry.
View this webinar to learn about the groundbreaking Genetic Cardiomyopathy Registry! Explore how this new initiative aims to revolutionize our understanding of inherited cardiomyopathy. The Genetic Cardiomyopathy Registry was launched in partnership with NORD’s IAMRARE Program. Topics covered will include:
- Overview of genetic cardiomyopathy and its impact
- The urgent need for a dedicated genetic cardiomyopathy registry
- How the registry will collect and utilize data to potentially advance research and improve patient care
- How to participate – criteria for individuals and families with inherited cardiomyopathy
- The future of genetic cardiomyopathy research – potential breakthroughs and treatments
- Q&A session
Questions about this registry? Please email patientquestions@geneticcardiomyopathy.org