While the exact cause of DCM is not always clear, it is now estimated that up to 50% of cardiomyopathy cases are due to genetic causes.
Approximately 40 gene mutations are now known to cause DCM. Identifying the specific gene involved in causing a person’s DCM can be crucial for understanding the condition’s progression, prognosis, and potential treatment options.
Below are some powerful patient stories on the life-saving role of genetic testing.
Mel, a DCM survivor, explains being diagnosed with genetic DCM and later, needing a heart transplant. He now aims to raise awareness of genetic cardiomyopathy to help create a brighter future for others.
A couple shares the importance of raising awareness about genetic cardiomyopathy for others sharing a similar journey.
Defying a 5-year prognosis: Stephanie thrives with genetic cardiomyopathy decades later.
Through Adam’s transplant and their daughter’s memory, Adam and Kaylee’s passionate message rings clear: “Get tested for genetic cardiomyopathy. It could inform your care and even save a life.”
A genetic counselor’s view of genetic cardiomyopathy
In 2023, the DCM Foundation along with all major cardiomyopathy patient groups, and eight biopharma companies, launched the Genetic Cardiomyopathy Awareness Campaign and Consortium (“GCAC”).
Please CLICK HERE to visit the new Genetic Cardiomyopathy website to learn about:
- The important role of genetics and cardiomyopathy.
- The need for genetic testing.
- An easy and inexpensive path to get genetically tested.
Please click here to learn about genetic cardiomyopathy testing and counseling services.
Please visit www.geneticcardiomyopathy.org to learn more about genetic cardiomyopathy.
For more information about DCM Genetics please click here.
