Founded in 2017, the DCM Foundation is a non-profit organization with a mission to provide hope and support to patients and families with Dilated Cardiomyopathy through research, advocacy, and education.
Board of Directors
Greg Ruf, President
For the past 31 years, Greg has launched and financed seven separate entrepreneurial ventures, six of which have been financially successful. He currently spends his workdays helping the DCM Foundation grow and does small business coaching.
Greg is a DCM patient and nine family members have been identified with gene mutations known to cause DCM. His hope is that by raising awareness and by supporting research a means will be found to halt, reverse or even completely prevent DCM from developing in at-risk individuals.
In 2014 he was diagnosed with DCM with an extremely weakened heart muscle and conduction system disease requiring an ICD. Through genetic testing, it was revealed he had three mutations, two in the LMNA gene and one in the TPM1 gene, which were responsible for his DCM. Greg’s immediate and extended relatives carry 1, 2, or all three of these mutations.
Greg launched the DCM Foundation in 2017 to bring education, hope, and resources to DCM patients and their family members.
After a period of failing health, Greg received a new heart on July 15, 2021. Greg lives in Dublin, Ohio with his wife Brenda of over 30 years, and together they have three grown children and two grandchildren.
Gregory Hershberger, Treasurer
Operations and Policy Expert
Gregory Hershberger retired from the Federal Bureau of Prisons in October 2004 as Regional Director for the North Central Region, located in Kansas City, after 26 years of service. As Regional Director, he oversaw the operation of 18 Bureau of Prisons facilities, and a network of community corrections assets located throughout 12 mid-western states. This responsibility included an annual budget of $578 million, a staff complement of approximately 6,700 employees, and the safe and secure housing for over 20,000 inmates. As a member of the Director’s Executive Staff, Mr. Hershberger assumed a major role in the development and approval of national policy and procedures for the agency.
Mr. Hershberger earned a Bachelor’s degree from the University of Nebraska-Lincoln, and a Master’s Degree from Washington State University in Pullman, Washington. He and his wife Catherine have been married for 49 years, and following his retirement moved to Lincoln, Nebraska. Mr. Hershberger served on the Board of Directors of Christian Heritage, a ministry for children and families for several years after returning to Lincoln. He currently serves as a volunteer with Good News Jail and Prison Ministry and Habitat for Humanity. Gregory and Catherine are active members of Westminster Presbyterian Church in Lincoln.
Mr. Hershberger was diagnosed with DCM in early 2017, which necessitated the implantation of an ICD-Pacemaker. Even though his brother Ray Hershberger, MD specializes in DCM research, he knew very little about DCM prior to his diagnosis. His prior lack of understanding of the condition moved him to assist the Dilated Cardiomyopathy Foundation to demystify the origins and treatment of the disease for others experiencing the same disorder.
Ray Hershberger, MD, Secretary
Professor of Medicine and Director, Division of Human Genetics
Ray Hershberger, MD is a Professor of Medicine, a heart failure and transplant cardiologist, and a clinical and laboratory scientist who is the founder and Principal Investigator for the DCM (formerly, FDC) Research Project. He and his group continue their research efforts to discover and understand the genetics and genomics of human dilated cardiomyopathy and translate new knowledge into the practice of cardiovascular medicine.
In his current position at The Ohio State University College of Medicine since 2012, he directs the Division of Human Genetics in the Department of Internal Medicine and is jointly appointed in the Cardiovascular Division. He devotes his outpatient clinical effort to cardiovascular genetics and also serves with the in-patient heart failure and cardiac transplantation service.
Dr. Hershberger received his cardiovascular, heart failure and cardiac transplantation training at the University of Utah in Salt Lake City from 1985 – 1990, which also included a three-year laboratory-based research fellowship. In 1990 he joined the faculty of the Division of Cardiology at the Oregon Health & Science University (OHSU) in Portland, Oregon, as a heart failure and transplant cardiologist. Dr. Hershberger started the Familial Dilated Cardiomyopathy (FDC) Research Project in 1993 while at OHSU. He also directed the OHSU Heart Failure and Transplant Cardiology programs from 1993-2007.
In 2007 Dr. Hershberger joined the Miller School of Medicine at the University of Miami in Miami, Florida, where he served as Associate Chief of the Division of Cardiology, Director of the Advanced Heart Failure Therapies Programs, and Director of Translational Cardiovascular Genetic Medicine.
Kathy Crispell, MD
Cardiovascular Disease and
Kathy Crispell, MD was a Cardiovascular Disease and Advanced Heart Failure/Transplant specialist at the Portland VA Medical Center and a faculty member at Oregon Health and Science University. She did her Cardiovascular training and Advanced Heart Failure/Transplant training at Oregon Health Sciences University (OHSU). During that time she participated in research studying DCM in families. Dr. Hershberger was her mentor. She remained at OHSU until 2003 when she was recruited by Northwest Kaiser Permanente (KPNW). While there she was the Chief of Cardiology, Director of Cardiovascular Services and Chief Medical Officer. During her time in these roles, Dr. Crispell started an Advanced Heart Failure Program and a Cardiac Mechanical Assist Program.
Dr. Crispell retired from KPNW in 2015 but has continued to work part-time at the Portland VA Medical Center and most recently back at OHSU as an Adjunct Associate Professor doing part-time work caring for patients with Advanced Heart Failure and after transplant. She has also done volunteer Global Health work in Myanmar and Ethiopia since 2015.