Blog Articles, Webinars & Resources Organized by Topic
Click on each link below to access the information.
Click on each Topic Area to jump to that section or simply scroll down to view all topics:
- Patient Stories
- Genetic Testing
- Clinical Trials
- Financial & Insurance Resources
- Living with DCM
- Ask a Heart Failure Specialist
Patient Stories
Articles
Diagnosed with DCM at 40 – A Hereditary Link?
Stephanie Fallon’s Story – Living Well with DCM Since Age 15
Woman Vows to “Live Her Best Life” After DCM & Heart Transplant
Adam’s Story of Familial Dilated Cardiomyopathy
From Athlete to DCM Diagnosis & Heart Transplant at Age 30
Balancing a Busy Schedule & Full Time Work with DCM
Coping with a Chronic Illness: DCM & the Importance of Mental Health
Millicent’s Story: DCM & Genetic Testing
One Woman’s 14+ Year Story with DCM
Webinars
Living with DCM – A Patient’s Perspective (with 3 DCM patients)
Living with a Pacemaker or ICD
DCM & Women – One Story of Survival and Hope
DCM & Heart Transplant: 3 Patient Stories
Successfully Living with DCM – 2 Patient Panels (9/24/22 DCM Patient Conference Session #3)
Resources
More Patient Stories
Genetic Testing
Articles
Benefits of Genetic Testing
Study Reveals the Need for DCM Screening
Major DCM Genetics Research Being Conducted
Family History of DCM? Study Findings Highlight the Need for Screening & Early Intervention
Renovacor Announces Partnerships with DCMF & Others
Millicent’s Story: DCM & Genetic Testing
Exciting News from Tenaya Therapeutics
New Potential Targets for Gene Therapy in Heart Failure Patients
Webinars
2022 Ask a Heart Failure Specialist
The Latest in DCM Genetic Research & Therapies in Development
Hope for MYH7 & TTN DCM Patients
The Science Behind DCM Therapies
Resources
How to Get Genetically Tested
Clinical Trials
Articles
Natural History Study Seeking Patients with MYBPC3 Genetic Mutation
Advancements in Gene Therapy Manufacturing
BAG3 Mutation Discovery & Gene Therapy Development
Researching Cures for Inherited Cardiomyopathies
Clinical Trial Now Enrolling for Patients with Genetic DCM (MYH7)
Sponsored Webinars
The Latest in DCM Genetic Research & Therapies in Development
Hope for MYH7 & TTN DCM Patients
The Science Behind DCM Therapies
The Latest in DCM Research & Therapies (9/24/22 DCM Patient Conference Session #2)
Resources
Research Studies & Clinical Trials
Discovering a Cure for LMNA Cardiomyopathy
Financial & Insurance Resources
Articles
Tips on Paying for Medication
Webinars
Navigating Financial & Insurance Issues
Resources
Navigating Insurance
Insurance & Financial Resource Links
Living with DCM
Articles
Finding Help for Anxiety Associated with DCM
Understanding the Relationship Between Sleep Apnea and DCM
An Important Message from Global Heart Hub
Prioritizing Your Heart Health
First DCM Patient and Family Conference – A Great Success!
Webinars
Living with DCM – A Patient’s Perspective
Living with a Pacemaker or ICD
Ask a Heart Failure Specialist
Causes of DCM & Stages of Heart Failure
Living Well with Cardiomyopathy (with Stanford)
DCM & Heart Transplant: 3 Patient Stories
Prioritizing Your Heart Health (with Global Heart Hub)
2022 Heart Failure Patient & Caregiver Day (12 recorded sessions put on by HFSA)
DCM Foundation’s Strategic Pillars – and What This Means to You
DCM Education & Navigating a DCM Diagnosis (9/24/22 DCM Patient Conference Session #1)
What You Should Know About DCM & SILENT Sleep Apnea
Resources
Recently Diagnosed
Resource Guide to Staying in Care
Emotional Well-Being & Impact on the Family
Non-profit Patient Partner Organizations
Ask a Heart Failure Specialist
Articles
Stages of DCM
Webinars
2022 Ask a Heart Failure Specialist
The Heart Transplant Journey – What You Should Know
DCM Education & Navigating a DCM Diagnosis (9/24/22 DCM Patient Conference Session #1)
Resources
The Heart Transplant Journey – a slide deck
Interacting with Healthcare Professionals