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DCM Patient & Family Virtual Conference


Saturday, September 24, 2022
11:00 AM – 5:00 PM ET


This full-day virtual event was broken into 3 Sessions. Recordings are now available here:


11:00 AM – 11:15 AM ET  Welcome & Introduction

(Presented by Greg Ruf and Jae-ann Rock)


11:15 AM – 12:45 PM ET 
SESSION #1 – DCM Education & Information


  • Dilated Cardiomyopathy Basics (Presenter: Dr. Kathy Crispell)
    • What is DCM
    • Diagnosis & Causes
    • Genetics & DCM
    • Q&A
  • Successfully Navigating a DCM Diagnosis (Presenter: Barbara McKenna-Amos)
    • Importance of finding a heart failure specialist
    • Genetics & DCM (understanding the importance and creating awareness)
    • DCM Foundation plans to address these challenges and opportunities
    • Q&A
  • Live Question & Answer Session


1:00-2:45 PM ET
SESSION #2  The Latest in DCM Research & Therapies


  • Potential New Therapies for Dilated Cardiomyopathy – Presentations by Industry Leaders
  • Industry Panel Discussion
    • Positive Research and Hope for the Future
    • Potential Roadblocks (genetic testing awareness/availability, research studies or trials, etc.)
    • Patient Involvement
  • Live Q&A


3:00 – 4:40 PM ET
SESSION #3  Patient-to-Patient Panel Discussions


  • Panel 1: Successfully Living with DCM – 3 Patients Share their Experiences
    • Fitness & Nutrition 
    • Heart Transplant
    • Hope for the Future: Maintaining a Healthy, Productive Life
    • Live Q&A
  • Panel 2: Self-Advocacy – Hear from 3 DCM Patients 
    • Getting the Best Care/Doctors; When to Seek a Second Opinion
    • Talking with Health Practitioners
    • Finances and Insurance
    • Live Q&A


4:40 PM ET Closing Remarks


5:00 PM ET Conference Closes


To view the speaker lineup, please click HERE.

Please share this information with other DCM patients and family members!


The DCM Patient & Family Conference is brought to you by the DCM Foundation, with support from our generous sponsors:




Bristol Myers Squibb           




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